ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2022
Dementia Family Caregiving in Rural Appalachia: A Sociocultural Model of Care Decisions and Service Use.
Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Conceptualizing Family Caregivers' Use of Community Support Services: A Scoping Review.The Gerontologist · 2024Pooled it
- Utilization of home- and community-based services among rural family caregivers of persons with dementia: the role of the area deprivation index.Frontiers in public health · 2025Trial
- Who chooses consumer-directed personal care? Characterizing users and switchers under New York Medicaid.Health affairs scholar · 2025Article
- Niece and nephew dementia caregivers: family relationships and care dynamics.The Gerontologist · 2025Article
- Support for Care Partners and Caregivers: 2023 Summit Session 5.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Unmet Needs and Factors Impacting Home- and Community-Based Service Use Among Rural Appalachian Caregivers of People With Alzheimer's and Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Aging in rural areas: balancing land, care, and connection of family caregivers of persons with dementia: a qualitative analysis.Innovation in aging · 2025Article
- Comparing Unmet Service Needs Between Rural and Urban Family Caregivers of People Living With Alzheimer's Disease and Related Dementias: A Multisite Study.The Gerontologist · 2024Article
- Dementia Care in Rural Appalachia: Multilevel Analysis of Individual- and County-Level Factors.The Gerontologist · 2024Article
- Preimplementation Evaluation of a Self-Directed Care Program in a Veterans Health Administration Regional Network: Protocol for a Mixed Methods Study.JMIR research protocols · 2024Article
- Family Caregivers' Management of Behavioral Expressions of Dementia.The Gerontologist · 2024Article
- Spiritual Well-Being in Appalachian Family Caregivers.Online journal of rural nursing and health care : the official journal of the Rural Nurse Organization · 2024Article
- Use of Caregiving Support Services Among Diverse Dementia Caregivers by Geographic Context.The Gerontologist · 2024Article
- Social worlds of Appalachian women caregivers of older relatives living with dementia.Frontiers in global women's health · 2024Article
- Place-based, intersectional variation in caregiving patterns and health outcomes among informal caregivers in the United States.Frontiers in public health · 2024Article
- COVID-19 Vaccination Experiences of Family Caregivers of Persons Living with Dementia in Rural Appalachia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Article
- Family Caregivers in Rural Appalachia Caring for Older Relatives With Dementia: Predictors of Service Use.Innovation in aging · 2022Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
objectivesExaminations of cultural variations in caregiving experiences and practices tend to focus on racially and ethnically diverse family caregivers. We extended this research by exploring the role of place-based cultural constructs on care decisions of family caregivers for persons living with dementia in rural Appalachia whose experiences and backgrounds dwell outside the lines of dominant culture.
methodsGuided by our sociocultural conceptual model of service use and a descriptive qualitative study design, we conducted in-depth interviews with 30 caregivers for persons living with dementia to understand how predisposing and enabling factors influence caregiving decisions, including the use of services to care for persons living with dementia.
resultsThree predisposing factors reflecting the culture of rural Appalachian counties in Virginia (reasons for becoming a caregiver, previous caregiving experience, and deference to the person living with dementia) shaped decisions about caregiving responsibilities and service use. Three place-based enabling factors (a personal sense of belonging, knowledge of services, and family support for service use) played an important role in facilitating access to services. DISCUSSION: Findings revealed subtle variation across caregivers in this study and in comparison, to caregivers' experiences more generally. We interpret these variations in light of culturally influenced attitudes, family norms, and sources of information about formal services. Place-based cultural experience influenced dementia family caregivers' behaviors and choices regarding formal service use, suggesting that investigators should pay more attention to cultural influences in future caregiving research.
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