Evidence map›Paper›PMID 34944928›Full record

ArticleCancers2021

Differences in Internet Use and eHealth Needs of Adolescent and Young Adult Versus Older Cancer Patients; Results from the PROFILES Registry.

Carla Vlooswijk, Olga Husson, Emiel J Krahmer, Rhodé Bijlsma, Suzanne E J Kaal, Sophia H E Sleeman, Lonneke V van de Poll-Franse, Winette T A van der Graaf, Nadine Bol, Mies C van Eenbergen

Abstract read
In one paragraph

Article in Cancers, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Article
  2. Article
  3. Preferences for electronic health information support concerning chemotherapy adverse reactions among young and middle-aged breast cancer patients based on the Kano model.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Carla VlooswijkResearch and Development, Netherlands Comprehensive Cancer Organisation, 3511 DT Utrecht, The Netherlands.
Olga HussonDepartment of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, 1066 CX Amsterdam, The Netherlands.ORCID 0000-0002-1387-8686
Emiel J KrahmerTilburg Center for Cognition and Communication (TiCC), Department of Communication and Cognition, Tilburg University, 5037 AB Tilburg, The Netherlands.
Rhodé BijlsmaDepartment of Medical Oncology, University Medical Center, 3584 CX Utrecht, The Netherlands.ORCID 0000-0003-0980-6652
Suzanne E J KaalDepartment of Medical Oncology, Radboud University Medical Center, 6525 GA Nijmegen, The Netherlands.
Sophia H E SleemanDutch AYA 'Young and Cancer' Care Network Utrecht, 3511 DT Utrecht, The Netherlands.
Lonneke V van de Poll-FranseResearch and Development, Netherlands Comprehensive Cancer Organisation, 3511 DT Utrecht, The Netherlands.
Winette T A van der GraafDepartment of Medical Oncology, Netherlands Cancer Institute-Antoni van Leeuwenhoek, 1066 CX Amsterdam, The Netherlands.ORCID 0000-0001-7549-3338
Nadine BolTilburg Center for Cognition and Communication (TiCC), Department of Communication and Cognition, Tilburg University, 5037 AB Tilburg, The Netherlands.
Mies C van EenbergenResearch and Development, Netherlands Comprehensive Cancer Organisation, 3511 DT Utrecht, The Netherlands.

Funding

Dutch Cancer Society 11788Dutch Research Council 198.007
6 · The paper itself

Abstract

backgroundOur aim was to evaluate differences in cancer-related internet patterns between AYAs (adolescents and young adults; 18-39 years at time of diagnosis) and older adult cancer patients (40+ years).

methodsCross-sectional surveys were distributed among AYA and older adult cancer patients regarding cancer-related internet use and eHealth needs.

results299 AYAs (mean age 31.8 years) and 270 older adults (mean age 55.8 years) participated. AYAs searched significantly more often on the internet on a daily basis just before diagnosis (45% vs. 37%), right after diagnosis (71% vs. 62%) and during treatment (65% vs. 59%) compared to older adults. During follow up, there was a trend that AYAs searched less often on the internet compared to older adults (15% vs. 17%). AYAs searched more often on topics, such as alternative or complementary therapies, treatment guidelines, fertility, end of life, sexuality and intimacy, lifestyle and insurance. AYAs felt significantly better informed (75%) after searching for cancer-related information compared to older adults (65%) and had significantly less unmet needs regarding access to their own medical information (22% vs. 47%). AYAs search more on the internet on a daily basis/several times per week in the diagnosis and treatment phase than older cancer patients. They search on different topics than older adults and seems to have less unmet eHealth needs.It is important that these are easy to find and reliable.

Indexed as

AYAscancer patientseHealthinternet use

Identifiers

PMID34944928
PMCPMC8699784

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.