ArticleChildren (Basel, Switzerland)2021
Exploring the Outcomes That Matter Most to Young People Treated for Chronic Pain: A Qualitative Study.
Article in Children (Basel, Switzerland), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- Children's Communication Choices About Musculoskeletal Pain and Injury: Insights From a Public Involvement Event.Health expectations : an international journal of public participation in health care and health policy · 2025Trial
- Article
- Chronic pain lived experience of pediatric sickle cell disease: A qualitative study.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2026Article
- Improving Pain Outcomes for Children and Adolescents at School via a Socio-Ecological Public Health Lens: A Strengths-Focused Interview Study With Teachers.Paediatric & neonatal pain · 2025Article
- Attrition From Pediatric Interdisciplinary Chronic Pain Clinics: Utilizing the "Paediatric Electronic Persistent Pain Outcomes Collaboration (PaedePPOC) Database".The Clinical journal of pain · 2025Article
- Understanding School Presenteeism and Absence in Adolescents Affected by Chronic Musculoskeletal Pain: A Qualitative Study.Child: care, health and development · 2025Article
- Understanding the importance of therapeutic alliance during physiotherapy treatment for musculoskeletal pain in children: a scoping review.Frontiers in pain research (Lausanne, Switzerland) · 2024Article
- A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments.The Cochrane database of systematic reviews · 2023Review
- Participant-Generated Timelines: A Participatory Tool to Explore Young People With Chronic Pain and Parents' Narratives of Their Healthcare Experiences.Qualitative health research · 2023Article
- Baseline Factors Associated with Pain Intensity, Pain Catastrophizing, and Pain Interference in Intensive Interdisciplinary Pain Treatment for Youth.Children (Basel, Switzerland) · 2023Article
- "You just want someone to help": Outcomes that matter to parents when their child is treated for chronic pain.Paediatric & neonatal pain · 2023Article
- Animal-Assisted Psychotherapy for Pediatric Chronic Pain: Case Series of an Open Pilot Study to Test Initial Feasibility and Potential Efficacy.Journal of pain research · 2023Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Global and national policies state that all children and young people should be part of decision making and that outcomes that matter to them should take priority, yet patient-centred outcomes have been identified as a gap in the paediatric chronic pain literature. This study gave youths experiencing chronic pain a platform to have their views heard. Using novel methods, twenty-one young people, aged 11 to 18 years old, completed a semi-structured interview in which they constructed a timeline drawing to symbolise their treatment. They identified when aspects of their life changed (outcomes) and described the importance of these changes. Thematic analysis identified four themes that emerged at different stages of the treatment: "perfect storm"; "turning points"; "disconnect"; and; "free". "Turning points" were points in time when the narrative of the young person took a turn in a different direction. At these points, the outcomes important to them also changed. Youths initially prioritised outcomes related to pain, then during treatment the focus became their emotional functioning, with role functioning and "going out" becoming the focus at the end. The stage of treatment as perceived by the young person impacted which outcomes mattered most.
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Registered trials
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