Evidence map›Paper›PMID 34943318›Full record

ArticleChildren (Basel, Switzerland)2021

Reducing the Burden of Care: Multidisciplinary Management of Late-Manifested Crouzon Syndrome-A Case Report.

Sarah Achterrath, Teresa Kruse, Julia Neuschulz, Isabelle Graf, Joachim Zöller, Bert Braumann

Abstract readCase Reports
In one paragraph

Article in Children (Basel, Switzerland), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Sarah AchterrathDepartment of Orthodontics, Faculty of Medicine and University Hospital Cologne, University of Cologne, 50937 Cologne, North Rhine Westphalia, Germany.ORCID 0000-0003-4754-6329
Teresa KruseDepartment of Orthodontics, Faculty of Medicine and University Hospital Cologne, University of Cologne, 50937 Cologne, North Rhine Westphalia, Germany.ORCID 0000-0002-3431-7749
Julia NeuschulzDepartment of Orthodontics, Faculty of Medicine and University Hospital Cologne, University of Cologne, 50937 Cologne, North Rhine Westphalia, Germany.
Isabelle GrafDepartment of Orthodontics, Faculty of Medicine and University Hospital Cologne, University of Cologne, 50937 Cologne, North Rhine Westphalia, Germany.
Joachim ZöllerCenter for Rare Orofacial and Craniofacial Malformations, Faculty of Medicine and University Hospital Cologne, University of Cologne, 50937 Cologne, North Rhine Westphalia, Germany.
Bert BraumannDepartment of Orthodontics, Faculty of Medicine and University Hospital Cologne, University of Cologne, 50937 Cologne, North Rhine Westphalia, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The therapy of patients with Crouzon syndrome involves a multidisciplinary team. In most cases, this therapy is extensive, time-consuming, and exhausting for the patient. This case report illustrates a temporally coordinated therapy plan that succeeds in reducing the burden of care. Showing typical extraoral characteristics of Crouzon syndrome, the patient had a frontal and left-sided crossbite, and impaction of the maxillary canines. Multidisciplinary therapy included the extraction of multiple teeth, midface distraction at Le Fort III level, and alignment of the impacted teeth. Before starting, during, and after completion of the treatment, the patient's oral health-related quality of life was assessed using COHIP-19. The combination of different treatment steps significantly reduced the duration of therapy. The therapy improved not only the patient's oro- and craniofacial function, but also the patient's facial appearance in a short treatment period. The patient's quality of life improved considerably during this time. In the treatment of severe craniofacial anomalies, the highest priority should be given to keeping the burden of care low. All measures should encourage young patients' appropriate psychosocial development despite extensive therapies, ensuring at the same time medically satisfactory treatment results.

Indexed as

burden of careCrouzon syndromemidface advancementprogressive postnatal pansynostosisquality of lifesystemic acceleratory phenomenontreatment planning

Identifiers

PMID34943318
PMCPMC8700770

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.