Evidence map›Paper›PMID 34941954›Full record

Trial reportPloS one2021

Staying moving, staying strong: Protocol for developing culturally appropriate information for Aboriginal people with osteoarthritis, rheumatoid arthritis, lupus and gout.

Penny O'Brien, Brooke Conley, Samantha Bunzli, Jonathan Bullen, Juli Coffin, Jennifer Persaud, Tilini Gunatillake, Michelle M Dowsey, Peter F Choong, Ivan Lin

Open access · goldAbstract readClinical Trial
In one paragraph

Trial report in PloS one, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
1.5field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 6 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 5 institutions in 1 country.

Penny O'BrienDepartment of Surgery, St Vincent's Hospital Melbourne, The University of Melbourne, Melbourne, VIC, Australia.
Brooke ConleyDepartment of Surgery, St Vincent's Hospital Melbourne, The University of Melbourne, Melbourne, VIC, Australia.ORCID 0000-0002-1677-4540
Samantha BunzliDepartment of Surgery, St Vincent's Hospital Melbourne, The University of Melbourne, Melbourne, VIC, Australia.
Jonathan BullenCurtin Medical School, Curtin University, Perth, WA, Australia.
Juli CoffinTelethon Kids Institute, Broome, WA, Australia.
Jennifer PersaudArthritis and Osteoporosis Western Australia, Perth, WA, Australia.
Tilini GunatillakeDepartment of Surgery, St Vincent's Hospital Melbourne, The University of Melbourne, Melbourne, VIC, Australia.
Michelle M DowseyDepartment of Surgery, St Vincent's Hospital Melbourne, The University of Melbourne, Melbourne, VIC, Australia.
Peter F ChoongDepartment of Surgery, St Vincent's Hospital Melbourne, The University of Melbourne, Melbourne, VIC, Australia.
Ivan LinWestern Australian Centre for Rural Health, The University of Western Australia, Geraldton, WA, Australia.
The University of Melbourne · AUArthritis Australia · AUCurtin University · AUThe Kids Research Institute Australia · AUThe University of Western Australia · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionAddressing disparities in arthritis care is an important yet unmet health need for Aboriginal and Torres Strait Islander people in Australia (respectfully Aboriginal people herewith). Despite the significant prevalence and burden of arthritis within Aboriginal communities, access to care for arthritis is low. One means to reduce existing disparities in health care is to address current challenges relating to the appropriateness and acceptability of health care information resources for Aboriginal people. Health information sources can help to empower patients and their families to have greater involvement in their care and to engage in self-management of their condition. Despite an extensive range of arthritis information resources being available, currently no resources have been culturally adapted and developed in collaboration with Aboriginal consumers with arthritis. This paper outlines the processes that will be undertaken within the Staying Moving, Staying Strong project. This project aims to develop culturally secure arthritis information for Aboriginal people with osteoarthritis, rheumatoid arthritis, lupus and gout. METHODS AND ANALYSIS: The overarching principle guiding this project is cultural security, referring to the incorporation of processes such that the research will not compromise the cultural rights, values and expectations of Aboriginal people. This project will prioritise partnerships, community engagement, community benefit, sustainability, transferability, and capacity building and therefore uphold the cultural rights and values of Aboriginal people. In this six-phase project we will; 1) Establish a community reference group and advisory committee; 2) Explore the health information needs and preferences of Aboriginal people with arthritis; 3) Synthesise the existing key recommendations in high quality clinical practice guidelines on arthritis care; 4) Culturally adapt key clinical recommendations; 5) Develop culturally appropriate arthritis resources and; 6) Qualitatively evaluate the developed resources.

Indexed as

Arthritis, RheumatoidGoutHealth Services, IndigenousLupus Erythematosus, SystemicOsteoarthritisAustraliaAustralian Aboriginal and Torres Strait Islander PeoplesFemaleHumansMale

Identifiers

PMID34941954
PMCPMC8699613
OpenAlexW4200316613

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.