ArticleBMC geriatrics2021
Concerns and potential improvements in end-of-life care from the perspectives of older patients and informal caregivers: a scoping review.
Article in BMC geriatrics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Effectiveness of interventions for informal caregivers of people with end-stage chronic illness: a systematic review.Systematic reviews · 2024Pooled it
- When Is the Best Time to Deliver Supportive Interventions to Hospice Family Caregivers? A Multi-Method Study.The Gerontologist · 2025Trial
- Hospitalization and Death Acceptance: A Meta-Ethnography of Perceptions of Hospital as a Place of Death for Nursing Home Residents.International journal of older people nursing · 2026Review
- How choice became a goal in itself: analysing the emphasis on choice and control at the end of life through the work of Charles Taylor.Medicine, health care, and philosophy · 2026Article
- Facilitators of and barriers to high-quality care at end-of-life: experiences of terminally ill patients and their relatives.BMC palliative care · 2026Article
- Psychosocial Impact Following Acute Hospitalization Among Patients With Hematologic Malignancies and Their Family Caregivers: A Content Analysis.Psycho-oncology · 2026Article
- Shifting the aged care culture from caring "for" residents to caring "about" residents: Advocating for a compassionate communities approach to care.Palliative care and social practice · 2026Article
- The needs of the family caregivers of patients with end-stage chronic obstructive pulmonary disease: a qualitative study in Iran.BMC nursing · 2025Article
- Healthy days at home and prognosis of older adults with cancer and non-cancer serious life-limiting illnesses.BMC geriatrics · 2025Article
- Experiences of intensive care unit nurses in end-of-life care at Ho Teaching Hospital, Ghana: a qualitative study.BMC nursing · 2025Article
- Knowledge of and Preferences for Medical Aid in Dying.JAMA network open · 2025Article
- Knowledge and perception of older adults toward end of life and advanced directive in Nigeria.Palliative & supportive care · 2024Article
- Measuring the Use of End-of-Life Symptom Relief Medications in Long-Term Care Homes-a Qualitative Study.Canadian geriatrics journal : CGJ · 2024Article
- Valuing the individual - evaluating the Dignity Care Intervention.Nursing ethics · 2023Article
- The Experiences and Views on Palliative Care of Older People with Multimorbidities, Their Family Caregivers and Professionals in a Spanish Hospital.Healthcare (Basel, Switzerland) · 2022Article
- Dignity and psychosocial related variables in elderly advanced cancer patients.BMC geriatrics · 2022Observational
- Exploring Health Care Providers' Experiences of Providing Collaborative Palliative Care for Patients With Advanced Heart Failure At Home: A Qualitative Study.Journal of the American Heart Association · 2022Article
- Inclusion of informal caregivers in the palliative and end-of-life care of older adults: a scoping review protocol.BMJ open · 2022Article
- Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals.International journal of environmental research and public health · 2022Article
- Time to FOCUS - 'Palliative Medicine Point-of-Care Ultrasound'.Indian journal of palliative careReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundOvertreatment in advanced age i.e. aggressive interventions that do not improve survival and are potentially harmful, can impair quality of care near the end of life (EOL). As healthcare provider perspectives on care quality may differ from that of service users, the aim of this study was to explore the views of older patients near EOL or their caregivers about the quality of health care at the EOL based on their lived experience, and to identify healthcare service improvements.
methodsMedline and backward citation searches were conducted for qualitative or quantitative studies reported on the views of patients and/or informal caregivers about EOL care quality. Thematic analysis was used to summarise qualitative data (primary analysis); narrative and tabulations were used to summarise quantitative data (secondary analysis).
resultsThirty articles met the inclusion criteria. Five main qualitative themes regarding quality care emerged: (1) Effective communication between clinicians and patients/caregivers; (2) Healthcare that values patient preferences and shared decision making; (3) Models of care that support quality of life and death with dignity; (4) Healthcare services that meet patient expectations; and (5) Support for informal caregivers in dealing with EOL challenges. The quantitative articles supported various aspects of the thematic framework.
conclusionThe findings of this study show that many of the issues highlighted by patients or bereaved relatives have persisted over the past two decades. There is an urgent need for comprehensive evaluation of care across the healthcare system and targeted redesign of existing EOL care pathways to ensure that care aligns with what patients and informal caregivers consider high-quality patient-centred care at the EOL.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.