ArticlePalliative medicine2022
Care practices of specialized outpatient pediatric palliative care teams in collaboration with parents: Results of participatory observations.
Article in Palliative medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
5 citing papers in PubMed, 11 citations in OpenAlex.
- Pediatric home-based hospice and palliative care: a scoping review.BMC palliative care · 2026Article
- Facilitators and barriers to parent-child communication in pediatric palliative care: An integrative review.International journal of nursing sciences · 2024Review
- Music Therapy with Preterm Infants and Their Families after Hospital Discharge: An Integrative Review.International journal of environmental research and public health · 2024Review
- Searching for human connection to transcend symbolisms in pediatric palliative care.Revista brasileira de enfermagem · 2023Article
- [Specialized outpatient palliative care for children, adolescents, and their families-the special needs of the target group. Results of the ELSAH study].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2022Article
Corrections and comments
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Authors and funding
10 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCollaboration between parents and professional care providers is an essential part of pediatric palliative care. As children are embedded in family systems and many of the patients are not able to communicate verbally, their parents are the primary interaction partners for palliative care providers. International standards for pediatric palliative care in Europe state that parents should be supported, acknowledged as the primary carers and involved as partners in all care and decisions.
aimTo find out through which care practices pediatric palliative care teams shape collaboration with parents in everyday care.
designEthnographic method of participatory observations. Field notes were analyzed using thematic analysis. SETTING/
participantsResearchers accompanied three pediatric palliative care teams on home visits to eight different families caring for a child with life-limiting conditions.
resultsCare practices of palliative care teams were characterized by familiarity, a resource-oriented attitude, empowerment of parents, shared decision-making and support for parents. Palliative care teams not only provided palliative medical treatment for the children, but also developed a trusting care partnership with parents. The teams employed a sensitive and multifaceted communication style in their collaboration with parents.
conclusionsCare practices in pediatric palliative care require time, communication skills, and a high level of psychosocial competence, to develop a trusting, collaborative relationship with parents. This should be taken into consideration when establishing pediatric palliative care structures, preparing guidelines, training staff, and deciding upon appropriate remuneration.
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Registered trials
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