ArticleBMC health services research2021
Defining a patient-centered approach to cancer survivorship care: development of the patient centered survivorship care index (PC-SCI).
Article in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02362750 (Evaluating Cancer Survivorship Care Models), which is not on this map. Cited by 14 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Evaluating Cancer Survivorship Care Models
Who cites it
14 citing papers in PubMed, 16 citations in OpenAlex.
- Financial concerns: a critical gap in survivors' experience of the implementation of the national standards for cancer survivorship care.Journal of cancer survivorship : research and practice · 2026Article
- The national standards for cancer survivorship care in action: caregiver experiences across stage, phase, and geography.Journal of cancer survivorship : research and practice · 2026Article
- Development of psychosocial care satisfaction scale for patients: validity and reliability study.BMC nursing · 2026Article
- Advancing care coordination to enhance shared care for complex cancer survivors in primary care (ACCESS-PC): protocol for a hybrid type 3 effectiveness-implementation trial.BMC primary care · 2026Article
- Mapping the unmet supportive care needs of cancer patients, survivors, and caregivers: results from a cross-sectional survey.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Patient Voice and Treatment Nonadherence in Cancer Care: A Scoping Review of Sentiment Analysis.Nursing reports (Pavia, Italy) · 2026Review
- Case study in VersKiK: a methodological approach for studying paediatric cancer survivors' pathways.BMC medical research methodology · 2025Article
- The association between a patient-centered quality of care index and self-efficacy among cancer survivors.Journal of cancer survivorship : research and practice · 2025Article
- Communication and relationships: how patients perceive informational and interactional organizational justice can improve patient-centered care, a study with samples from Spain and the U.S.BMC health services research · 2025Article
- Article
- Healthcare utilization trajectory among survivors of colorectal cancer.Journal of cancer survivorship : research and practice · 2023Article
- Advancing Patient-Centered Cancer Survivorship Care: Evaluation of a Dissemination Project.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Article
- Towards Better Pharmaceutical Provision in Europe-Who Decides the Future?Healthcare (Basel, Switzerland) · 2022Article
- Initiating and Maintaining Complete Decongestive Therapy Self-Management of Lymphedema Among Breast Cancer Survivors: Descriptive Qualitative Study.Integrative cancer therapiesArticle
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThis study presents the validation of an index that defines and measures a patient-centered approach to quality survivorship care.
methodsWe conducted a national survey of 1,278 survivors of breast, prostate, and colorectal cancers to identify their priorities for cancer survivorship care. We identified 42 items that were "very important or absolutely essential" to study participants. We then conducted exploratory and confirmatory factor analyses (EFA/CFA) to develop and validate the Patient-Centered Survivorship Care Index (PC-SCI).
resultsA seven-factor structure was identified based on EFA on a randomly split half sample and then validated by CFA based on the other half sample. The seven factors include: (1) information and support in survivorship (7 items), (2) having a medical home (10 items) (3) patient engagement in care (3 items), (4) care coordination (5 items), (5) insurance navigation (3 items), (6) care transitions from oncologist to primary care (3 items), and (7) prevention and wellness services (5 items). All factors have excellent composite reliabilities (Cronbach's alpha 0.84-0.94, Coefficient of Omega: 0.81-0.94).
conclusionsProviding quality post-treatment care is critical for the long-term health and well-being of survivors. The PC-SCI defines a patient-centered approach to survivorship care to complement clinical practice guidelines. The PC-SCI has acceptable composite reliability, providing the field with a valid instrument of patient-centered survivorship care. The PC-SCI provides cancer centers with a means to guide, measure and monitor the development of their survivorship care to align with patient priorities of care.
trial registrationClinicalTrials.gov ID: NCT02362750 , 13 February 2015.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.