ArticleInternational journal of behavioral medicine2022
Characterizing the COVID-19 Illness Experience to Inform the Study of Post-acute Sequelae and Recovery.
Article in International journal of behavioral medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 3 of them syntheses that pooled it.
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Who cites it
14 citing papers in PubMed, 3 syntheses or guidelines pooled it, 21 citations in OpenAlex.
- Patient and Professional Perspectives on Long COVID: A Systematic Literature Review and Meta-Synthesis.International journal of environmental research and public health · 2025Pooled it
- Psychosocial Aspects of the Lived Experience of Long COVID: A Systematic Review and Thematic Synthesis of Qualitative Studies.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Psychological experience of COVID-19 patients: A systematic review and qualitative meta-synthesis.American journal of infection control · 2022Pooled it
- Exploring the recovery journey of COVID-19 critical care survivors during the first year after hospital discharge.Journal of the Intensive Care Society · 2024Article
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- Meanings attributed to changes experienced by individuals after COVID-19 hospitalization.Revista brasileira de enfermagem · 2024Article
- Meaning and lived experience of Iranian COVID-19 survivors: A phenomenological study.Brain and behavior · 2024Article
- Dealing with uncertainty. A qualitative study on the illness' experience in patients with Long-COVID in Italy.Acta bio-medica : Atenei Parmensis · 2022Article
- COVID-19 Outcomes and Risk Factors Among People Living with HIV.Current HIV/AIDS reports · 2022Review
- Recovering from COVID-19 - A Process Characterised by Uncertainty: A Qualitative study.Journal of rehabilitation medicine · 2022Article
- The Illness Experience of Long COVID Patients: A Qualitative Study Based on the Online Q&A Community Zhihu.International journal of environmental research and public health · 2022Article
- Patient experience of symptoms and impacts of COVID-19: a qualitative investigation with symptomatic outpatients.BMJ open · 2022Article
- The Emotional and Personal Experiences of the COVID-19 Illness During the Early Pandemic: A Qualitative Study.Journal of the Academy of Consultation-Liaison PsychiatryArticle
Corrections and comments
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Authors and funding
15 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundThere is an urgent need to fully understand the impact of variable COVID-19 experiences and the optimal management of post-acute sequelae of SARS-CoV-2 infection. We characterized the variability in the acute illness experience and ongoing recovery process from participants in a COVID-19 recovery cohort study in Northern California in 2020.
methodWe completed 24 semi-structured in-depth interviews with adults with confirmed positive SARV-CoV-2 nucleic acid amplification test result, had recovered or were recovering from acute infection, and underwent serial evaluations. We purposefully sampled English- and Spanish-speaking adults with asymptomatic, mild, and severe symptomatic infection, including those who were hospitalized and those with HIV co-infection. We used a thematic analysis to analyze interviews and identify salient themes.
resultsAfter integrating the thematic analysis with clinical data, we identified key themes: (1) across symptom profiles and severity, experiencing COVID-19 was associated with psychological distress; (2) symptomatic infection carried uncertainty in symptom presentation and ongoing recovery (e.g., long COVID); and (3) health information-seeking behavior was facilitated by access to medical care and uncertainty with the recovery process.
conclusionOur data informs the emerging field of "long COVID" research and shows a need to provide information and continuous support to persons with post-acute sequelae to ensure they feel secure along the path to recovery.
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