ArticleAfrican journal of disability2021
The black hole of dealing with a disability diagnosis: Views of South African rural parents.
Article in African journal of disability, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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Who cites it
6 citing papers in PubMed.
- Caregiver beliefs and practices about communication disorders in early childhood development centres from Durban: A qualitative study.BMJ public health · 2026Article
- Contextual factors experienced by mothers of children with special needs.The South African journal of physiotherapy · 2024Article
- 'People don't understand what we go through!': Caregiver views on South Africa's care dependency grant.African journal of disability · 2023Article
- 'Yebo, it was a great relief': How mothers experience their children's autism diagnoses.African journal of disability · 2023Article
- The support needs of families raising children with intellectual disability.African journal of disability · 2022Article
- Parenting a child with disability in rural South Africa: Navigating the healthcare system.African journal of disability · 2022Article
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Authors and funding
3 authors.
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Abstract
backgroundLack of support systems in the management of health and rehabilitation related problems, including the stigma of giving birth to a child with disability, results in some parents ignoring the doctor's prognosis of lifelong disability.
objectivesThe study was conducted in the Eastern Cape province (ECP) of South Africa (SA) on parents' views in caring for children with disability in an area with minimal health facilities in a rural setting.
methodData was collected using exploratory descriptive qualitative methods. A Xhosa-speaking researcher facilitated six focus group discussions and conducted one individual in-depth interview with 37 parents or caregivers of children with disability residing at Happy home. Only one father was interviewed. Thematic analysis was used in interpreting data obtained from interviews.
resultsThe findings revealed themes indicating key concerns of parents, which were as follows: challenges with disability diagnosis, negative attitudes of health professionals, health and rehabilitation related problems, and lack of support from families and community.
conclusionCaring for children with disability in a rural setting where services are minimal or not available to the poorest people who mostly need such services is not easy. Thus, to respond appropriately to the health and support needs of children with disability, it is crucial to understand the social context and needs of their families and caregivers. Due to size of the study, findings cannot be generalised. Recommendations are made for further studies to explore the vital issues affecting parents of children with disabilities.
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