ArticleResearch involvement and engagement2021
Reporting of patient and public involvement and engagement (PPIE) in clinical trials published in nursing science journals: a descriptive study.
Article in Research involvement and engagement, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
29 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Public involvement in Australian clinical trials: A systematic review.Clinical trials (London, England) · 2024Pooled it
- Parents' experience of children with acquired brain injury undergoing neurorehabilitation: a systematic review.BMJ paediatrics open · 2024Pooled it
- Reporting of PPI and the MCID in phase III/IV randomised controlled trials-a systematic review.Trials · 2023Pooled it
- Questions for more insightful and useful analyses of barriers and facilitators to public involvement and engagement in health research: a critical narrative review.Research involvement and engagement · 2026Review
- Equitable partnership: patient and public involvement and engagement and community engagement in mental health research in Pakistan.Research involvement and engagement · 2026Article
- Patient and public perceptions of involvement and engagement in healthcare research: a descriptive exploratory qualitative study in Hong Kong.Research involvement and engagement · 2026Article
- Evolution of Patient and Public Involvement and Engagement in Health-Related Research: A Concept Analysis.Journal of advanced nursing · 2026Review
- Evaluating Patient and Public Involvement and Engagement Activity Within the 3DPiPPIn Trial: A Qualitative Exploration of Contributors' Perspectives on Their Impact.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Article
- Patient and public involvement (PPI) reporting in maternal and neonatal clinical trials: an exploratory review.Trials · 2026Review
- The Rise of Scoping Reviews in Nursing Science: Trends, Merits, and Responsible Use.Nursing reports (Pavia, Italy) · 2025Article
- Patient and public involvement in secure mental health research: setting-specific considerations and a protocol for involvement in the CORAS study (COllaborative Risk ASsessment and management).Research involvement and engagement · 2025Review
- Five years of patient and public involvement and engagement (PPIE) in the development and evaluation of the Pain-at-Work toolkit to support employees' self-management of chronic pain at work.Research involvement and engagement · 2025Article
- Patient and public involvement in randomised controlled trial design and implementation: a process evaluation of the linking you to support and advice (LYSA) trial.Research involvement and engagement · 2025Article
- Research collaboration with care home residents: a systematic review of public involvement approaches.Research involvement and engagement · 2025Review
- CONSORT 2025 explanation and elaboration: updated guideline for reporting randomised trials.BMJ (Clinical research ed.) · 2025Article
- How Can We Enhance Patient and Public Involvement and Engagement in Nursing Science?Nursing reports (Pavia, Italy) · 2025Article
- How can patients shape digital medicine? A rapid review of patient and public involvement and engagement in the development of digital health technologies for neurological conditions.Expert review of pharmacoeconomics & outcomes research · 2025Review
- Decolonisation and Self-Regulation as Alternative Paths to Data Science Health Research Governance in Africa.Wellcome open research · 2025Article
- The patient's perspectives of safe and routine proactive deprescribing in primary care for older people living with polypharmacy: a qualitative study.BMC geriatrics · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient and Public Involvement and Engagement (PPIE) in research positively affects the relevance, quality, and impact of research. Around 11% of studies published in leading medical journals demonstrate PPIE. The extent of PPIE in nursing research has not been previously studied.
methodsA descriptive study of PPIE in clinical trials published in general nursing science journals between 1st January and 31st August 2021. Data were extracted from included studies against the five items of the Guidance for Reporting Involvement of Patients and the Public (GRIPP2) short form reporting checklist.
resultsWe searched 27 journals and identified 89 randomised controlled clinical trials. There was no statement or evidence of PPIE in any of the included trials.
conclusionNurse researchers need to ensure that they purposefully involve patients in their research and report this in papers describing study findings.
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Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.