Evidence map›Paper›PMID 34900702›Full record

ArticleFrontiers in oncology2021

Cohort Profile: The Socioeconomic Consequences in Adult Life After Childhood Cancer in Scandinavia (SALiCCS) Research Programme.

Friederike Erdmann, Line Elmerdahl Frederiksen, Hanna Mogensen, Camilla Pedersen, Luzius Mader, Mats Talbäck, Andrea Bautz, Elli Hirvonen, Anniina Kyrönlahti, Liisa Maria Korhonen and 5 more

Open access · goldAbstract read
In one paragraph

Article in Frontiers in oncology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
3.0field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 12 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors at 5 institutions in 6 countries.

Friederike ErdmannChildhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.
Line Elmerdahl FrederiksenChildhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.
Hanna MogensenUnit of Epidemiology, Institute of Environmental Medicine, Karolinska Institutet, Stockholm, Sweden.
Camilla PedersenChildhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.
Luzius MaderChildhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.
Mats TalbäckUnit of Epidemiology, Institute of Environmental Medicine, Karolinska Institutet, Stockholm, Sweden.
Andrea BautzChildhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.
Elli HirvonenInstitute for Statistical and Epidemiological Cancer Research, Finnish Cancer Registry, Helsinki, Finland.
Anniina KyrönlahtiInstitute for Statistical and Epidemiological Cancer Research, Finnish Cancer Registry, Helsinki, Finland.
Liisa Maria KorhonenInstitute for Statistical and Epidemiological Cancer Research, Finnish Cancer Registry, Helsinki, Finland.
Henrik HasleDepartment of Paediatrics, Aarhus University Hospital, Aarhus, Denmark.
Nea MalilaInstitute for Statistical and Epidemiological Cancer Research, Finnish Cancer Registry, Helsinki, Finland.
Laura-Maria Madanat-HarjuojaInstitute for Statistical and Epidemiological Cancer Research, Finnish Cancer Registry, Helsinki, Finland.
Maria FeychtingUnit of Epidemiology, Institute of Environmental Medicine, Karolinska Institutet, Stockholm, Sweden.
Jeanette Falck WintherChildhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.
Danish Cancer Society · DKFinnish Cancer Registry · FIKarolinska Institutet · SEAarhus University Hospital · DKUniversity of Bern · CH

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThe growing number of survivors of childhood cancer, with many years of life ahead, demonstrates the increasing clinical and public health relevance of investigating the risks of social and socioeconomic impairment after a childhood cancer diagnosis and the life-saving treatment. To enrich understanding of the mental, social and socioeconomic difficulties that childhood cancer survivors may face during their life-course, identify particularly vulnerable survivors and overcome the limitations of previous research, we initiated the Socioeconomic Consequences in Adult Life after Childhood Cancer in Scandinavia (SALiCCS) research programme.

methodsThis Nordic cross-border research programme is a collaboration between the Danish Cancer Society, the Finnish Cancer Registry and Karolinska Institutet to investigate a broad range of mental, social and socioeconomic conditions in long-term childhood cancer survivors in Denmark, Finland and Sweden. SALiCCS is based on a registry-based matched cohort design, comprising five-year survivors of cancer diagnosed at ages 0-19 years (1971-2008 in Denmark, 1971-2009 in Finland, 1971-2011 in Sweden), age-, sex- and country-matched population comparisons and sibling comparisons who were followed over time. Outcomes of interest included mental disorders, educational achievements, employment and profession, family life and the need of social security benefits. Individual-level data linkage among various national registries provided the data for the research programme.

resultsThe SALiCCS core population comprises 21,292 five-year survivors, 103,303 population comparisons and 29,644 siblings as a second comparison group. The most common diagnoses in survivors were central nervous system tumours, leukaemias and lymphomas. DISCUSSION: SALiCCS is the largest, most comprehensive population-based research initiative in this field, based on high-quality registry data with minimal risk of bias. The findings will be informative for evidence-based survivorship care targeting not only somatic late effects but also psychosocial impairments.

Indexed as

childhood cancer survivorsDenmarkfamily lifeFinlandregister-based researchsocial and socioeconomic outcomessurvivorshipSweden

Identifiers

PMID34900702
PMCPMC8662544
OpenAlexW3216379243

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.