Observational studyJournal of clinical nursing2022
Prevalence of distress and its associated factors among caregivers of people diagnosed with cancer: A cross-sectional study.
Observational study in Journal of clinical nursing, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 32 citations in OpenAlex.
- Emotion Regulation Interventions for Cancer Patients and Their Relatives: A Systematic Review.Cancer medicine · 2026Pooled it
- Psychological distress and its determinants among spouses of patients with familial clustering of hepatitis B virus-related hepatocellular carcinoma: A cross-sectional study.Asia-Pacific journal of oncology nursing · 2026Article
- Distress among primary caregivers of patients with cancer: a cross-sectional study.BMJ supportive & palliative care · 2026Article
- Evaluating the prevalence of somatization symptoms in the family of cancer patients.Scientific reports · 2025Article
- Unseen burden: Exploring caregiver experiences, barriers, and facilitators in foregut cancer care.Surgical oncology insight · 2025Article
- What can we learn from the evidence of psychosocial support for carers of people with cancer and how do we advance our efforts? A meta-review study.Journal of cancer survivorship : research and practice · 2025Review
- Integrating Family Caregivers Into Cancer Care: Implementation of Evidence-Based Caregiver Protocols Into Gynecologic Oncology Practice.JCO oncology practice · 2025Article
- Care Recipients' Cognitive Trajectories and Caregivers' Depressive Symptoms: The Mediating Role of Caregiving Burden.The Gerontologist · 2025Article
- Moderators of interdependent psychological distress in cancer survivor-caregiver dyads.Journal of psychosocial oncology · 2025Article
- Supporting Carers: Study Protocol of a Meta-Review of Psychosocial Interventions for Carers of People With Cancer.JMIR research protocols · 2024Article
- Post-Donation Regret and Anxiety Among Family Living Liver Donors: The Mediating Roles of Family Relationships and Sense of Mastery.Annals of transplantation · 2024Article
- Validating interRAI Chinese self-reported carer needs (SCaN) assessment and predicting caregiving distress among informal Chinese caregivers of older adults.BMC geriatrics · 2024Article
- "Queer people are excellent caregivers, but we're stretched so very thin": Psychosocial wellbeing and impacts of caregiving among LGBTQI cancer carers.BMC cancer · 2024Article
- Health literacy, eHealth literacy and their association with burden, distress, and self-efficacy among cancer caregivers.Frontiers in psychology · 2024Article
- Prevalence of distress and its associated factors among caregivers of people diagnosed with cancer: A cross-sectional study.Journal of clinical nursing · 2022Observational
- Psychological distress and morbidity of family members experiencing virtual visiting in intensive care during COVID-19: an observational cohort study.Intensive care medicine · 2022Observational
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
AIMS AND
objectivesTo (i) determine prevalence of distress among caregivers of people living with cancer, (ii) describe caregivers' most commonly reported problems and (iii) investigate which factors were associated with caregivers' distress.
backgroundThe psychological distress associated with a cancer diagnosis jointly impacts those living with cancer and their caregivers(s). As the provision of clinical support moves towards a dyadic model, understanding the factors associated with caregivers' distress is increasingly important.
designCross-sectional study.
methodsDistress screening data were analysed for 956 caregivers (family and friends) of cancer patients accessing the Cancer Council Western Australia information and support line between 1 January 2016 and 31 December 2018. These data included caregivers' demographics and reported problems and their level of distress. Information related to their care recipient's cancer diagnosis was also captured. Caregivers' reported problems and levels of distress were measured using the distress thermometer and accompanying problem list (PL) developed by the National Comprehensive Cancer Network. A partial-proportional logistic regression model was used to investigate which demographic factors and PL items were associated with increasing levels of caregiver distress. Pearlin's model of caregiving and stress process was used as a framework for discussion. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) checklist was followed.
resultsNearly all caregivers (96.24%) recorded a clinically significant level of distress (≥4/10) and two thirds (66.74%) as severely distressed (≥7/10). Being female, self-reporting sadness, a loss of interest in usual activities, sleep problems or problems with a partner or children were all significantly associated with increased levels of distress.
conclusionsCaregivers of people with cancer reporting emotional or familial problems may be at greater risk of moderate and severe distress. RELEVANCE TO CLINICAL PRACTICE: Awareness and recognition of caregiver distress are vital, and referral pathways for caregivers are the important area of development.
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