Evidence map›Paper›PMID 34890473›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2022

A framework for involving coproduction partners in research about young people with type 1 diabetes.

Jane Desborough, Anne Parkinson, Fiona Lewis, Harry Ebbeck, Michelle Banfield, Christine Phillips

Open access · goldAbstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
1.5field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 10 citations in OpenAlex.

  1. Article
  2. Consumer Engagement in Chronic Conditions Research: An Integrated Framework Informed by Recognition Theory.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  3. Article
  4. Review
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  7. Research Buddy partnership in a MD-PhD program: lessons learned.Research involvement and engagement · 2023
    Article
  8. A framework for involving coproduction partners in research about young people with type 1 diabetes.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Jane DesboroughDepartment of Health Services, Research and Policy, Research School of Population Health, College of Health and Medicine, Australian National University, Canberra, Australian Capital Territory, Australia.ORCID 0000-0003-1406-4593
Anne ParkinsonDepartment of Health Services, Research and Policy, Research School of Population Health, College of Health and Medicine, Australian National University, Canberra, Australian Capital Territory, Australia.ORCID 0000-0001-9053-0707
Fiona LewisAustralian National University Medical School, College of Health and Medicine, Australian National University, Canberra, Australian Capital Territory, Australia.
Harry EbbeckDepartment of Health Services, Research and Policy, Research School of Population Health, College of Health and Medicine, Australian National University, Canberra, Australian Capital Territory, Australia.
Michelle BanfieldCentre for Mental Health Research, Research School of Population Health, College of Health and Medicine, Australian National University, Canberra, Australian Capital Territory, Australia.ORCID 0000-0002-3024-1687
Christine PhillipsAustralian National University Medical School, College of Health and Medicine, Australian National University, Canberra, Australian Capital Territory, Australia.ORCID 0000-0001-5602-3664
Australian National University · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundInvolvement of end-users in research can enhance its quality, relevance, credibility and legitimacy; however, the processes through which these changes occur are unclear. Our aim was to explore a coproduction research team's experiences of their involvement in research about young people with type 1 diabetes mellitus (T1DM).

methodsSemi-structured interviews conducted with two young people with T1DM, two parents, one diabetes educator, one endocrinologist-scientist and one research-engineer explored experiences of coproduction research and its impact on both the research and the participants. Drawing on grounded theory, we undertook inductive analysis and storyline mapping to develop a theorized framework of mechanisms supporting the process of coproduction in T1DM research with young people.

findingsThe framework involving coproduction partners in research about young people with type 1 diabetes centres on the unique expertize that different team members bring to the research and describes conditions that enable expert contributions through the enactment of a variety of expert roles. The framework also describes outcomes-the impact of the expert contributions on both the research and the team members involved.

conclusionThe findings of this small exploratory study provide a sound foundation to develop further understanding about structures and processes that are integral for the success of coproduction research teams. The framework may provide a guide for researchers planning to incorporate coproduction, on elements that are important for this model of research to succeed. It may also inform coproduction impact assessment research and be used for hypothesis testing and expansion in future studies.

Indexed as

Diabetes Mellitus, Type 1AdolescentHumansResearch DesignResearch Personnelconsumer engagementcoproductiongrounded theoryimpactpatient and public involvementpatient experiencetype 1 diabetes mellitus

Identifiers

PMID34890473
PMCPMC8849360
OpenAlexW4200378952

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.