ArticleFuture healthcare journal2021
Attitudes, experiences, and safety behaviours of adolescents and young adults who read visit notes: Opportunities to engage patients early in their care.
Article in Future healthcare journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed.
- Advice for Improving the Experience of Web-Based Patient Portals: Qualitative Interviews With Caregiver-Adolescent Dyads.JMIR pediatrics and parenting · 2025Article
- Parental Access to Adolescent Online Healthcare Portals: Benefits, Problems, and Barriers.Applied clinical informatics · 2025Article
- Case Report: A health system's experience using clinical decision support to promote note sharing after the 21st Century Cures Act.JAMIA open · 2025Article
- Service Design and Evaluation of OpenNotes for Craniofacial Deformity Management in Patients and their Caregivers.Healthcare informatics research · 2024Article
- The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents.Journal of participatory medicine · 2024Article
- Guiding Principles for Adolescent Web-Based Portal Access Policies: Interviews With Informatics Administrators.JMIR pediatrics and parenting · 2024Article
- Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden.BMJ paediatrics open · 2024Article
- Adolescent Access to Clinicians' Notes: Adolescent, Parent, and Clinician Perspectives.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2024Article
- Patient Portal Privacy: Perspectives of Adolescents and Emerging Adults Living with HIV and the Parental/Guardian Role in Supporting Their Care.Applied clinical informatics · 2023Article
- Engaging Adolescents in Using Online Patient Portals.JAMA network open · 2023Article
- Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review.Journal of medical Internet research · 2022Article
- Safety and the pandemic: changing perspectives for patients, professionals and populations.Future healthcare journal · 2021Article
- Review
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The Cures Act made access to electronic visit notes ('open notes') nearly universal across the USA, and efforts to share open notes with patients are underway worldwide. This landmark policy change provides an opportunity to engage adolescents and young adults (AYA) early in their care, yet little is known about their attitudes related to reading notes. We compared the responses of 332 AYA (13-25 years old) and 6,914 adults (>25 years old) in a 2016 survey at two USA academic adult and paediatric hospitals. Over 85% of AYA and adults with available notes reported reading at least one note in the prior year. AYA reported similar benefits from note-reading to adults in 15 outcomes related to engagement, relational effects and safety behaviours, supporting efforts to engage AYA as partners in their care using open notes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.