ReviewFrontiers in public health2021
Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review.
Review in Frontiers in public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed.
- Exploring the feasibility of the my hospital passport app: Helping children identify and share coping preferences in medical procedures.PEC innovation · 2026Article
- Willingness to Share Smartwatch-Generated Health Data Among a Sample of Adults in Riyadh, Saudi Arabia.Healthcare (Basel, Switzerland) · 2026Article
- Justice in the governance of personal health data spaces: stakeholder perspectives in Belgium.BMC medical ethics · 2026Article
- Digital Literacy and Interpersonal Trust as Predictors of Willingness to Share Patient-Generated Health Data Among Korean Internet Users: Cross-Sectional Study Using Privacy Calculus and Communication Privacy Management Theories.Journal of medical Internet research · 2026Article
- Sharing Patient-Generated Health Data: The Role of Healthcare Quality, Mistrust, and Discrimination Across Race-Gender Identities.Journal of racial and ethnic health disparities · 2026Article
- Implementing Financial Screening for Adolescents and Young Adults Treated in the Outpatient Oncology Setting.JCO oncology practice · 2026Article
- Public Attitudes and Predictors of Public Awareness of Personal Digital Health Data Sharing for Research: Cross-Sectional Study in Japan.JMIR human factors · 2025Article
- Determinants of consent for electronic health information exchange: an observational retrospective study.Health research policy and systems · 2025Observational
- Factors impacting electronic patient-generated data use in safety-net systems: a qualitative study.Journal of the American Medical Informatics Association : JAMIA · 2025Article
- Article
- Data collaboration for causal inference from limited medical testing and medication data.Scientific reports · 2025Article
- Using Synthetic Health Care Data to Leverage Large Language Models for Named Entity Recognition: Development and Validation Study.Journal of medical Internet research · 2025Article
- Stakeholders' perceptions of personal health data sharing: A scoping review.PLOS digital health · 2024Article
- Electronic oral health surveillance system for Egyptian preschoolers using District Health Information System (DHIS2): design description and time motion study.BMC oral health · 2024Article
- Privacy Barriers in Health Monitoring: Scoping Review.JMIR nursing · 2024Article
- Article
- Article
- "Not Sure Sharing Does Anything Extra for Me": Understanding How People with Cardiovascular Disease Conceptualize Sharing Personal Health Data with Peers.International journal of environmental research and public health · 2022Article
- eHealth and mHealth in Chronic Diseases-Identification of Barriers, Existing Solutions, and Promoters Based on a Survey of EU Stakeholders Involved in Regions4PerMed (H2020).Journal of personalized medicine · 2022Article
- A qualitative study of perceptions of control over potential causes of death and the sources of information that inform perceptions of risk.Health psychology and behavioral medicine · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Using digital technology to share patient-generated health data has the potential to improve the self-management of multiple long-term health conditions. Sharing these data can allow patients to receive additional support from healthcare professionals and peer communities, as well as enhance their understanding of their own health. A deeper understanding of the concerns raised by those living with long-term health conditions when considering whether to share health data
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.