Evidence map›Paper›PMID 34886707›Full record

ArticleDementia (London, England)2022

Development and acceptability of a brief, evidence-based Dementia Awareness for Caregivers course in low- and middle-income countries.

Charlotte R Stoner, Monisha Lakshminarayanan, Daniel C Mograbi, Sridhar Vaitheswaran, Elodie Bertrand, Paula Schimidt Brum, Helen Durgante, Cleusa P Ferri, Sarah Mkenda, Richard Walker and 8 more

Registry-linked trialAbstract read
In one paragraph

Article in Dementia (London, England), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05887063 (Investigating the Feasibility, Acceptability, and Impact of an Online UK Dementia Awareness Course for Informal Caregivers), which is not on this map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05887063 nacompletednot on this map

Investigating the Feasibility, Acceptability, and Impact of an Online UK Dementia Awareness Course for Informal Caregivers: A Mixed Methods Study

TypeinterventionalSponsorUniversity College, LondonRan2022 to 2022Enrolled51ConditionsDementia, Caregiver BurdenArmsDementia Awareness Course UK
3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Trial
  2. Article
  3. Article
  4. Review
  5. Does theGlobal mental health (Cambridge, England) · 2023
    Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors.

Charlotte R Stoner4918Centre for Chronic Illness and Ageing, Institute for Lifecourse Development, School of Human Sciences, University of Greenwich, London, UK.
Monisha Lakshminarayanan29868Dementia Care in Schizophrenia Research Foundation (DEMCARES in SCARF), Chennai, Tamil Nadu, India.
Daniel C MograbiDepartment of Psychology, 28099Pontifical Catholic University of Rio de Janeiro, Brazil; Institute of Psychiatry, Psychology and Neuroscience, King's College London, UK.
Sridhar Vaitheswaran29868Dementia Care in Schizophrenia Research Foundation (DEMCARES in SCARF), Chennai, Tamil Nadu, India.ORCID https://orcid.org/0000-0001-7848-7638
Elodie Bertrand555089Institut de Psychologie, Université de Paris, France.
Paula Schimidt BrumDepartment of Psychiatry, 28105Universidade Federal de São Paulo, Brazil.
Helen DurgantePsychology Department, 28124Universidade Federal do Rio Grande (FURG), Rio de Janeiro, Brazil.
Cleusa P FerriDepartment of Psychiatry, 28105Universidade Federal de São Paulo, Brazil; Health Technology Assessment Unit, Hospital Alemão Oswaldo Cruz, Brazil.
Sarah MkendaOccupational Therapy Department, Kilimanjaro Christian Medical University College, Tanzania.
Richard WalkerPopulation Health Sciences Institute, 5994Newcastle University, UK.
Catherine DotchinPopulation Health Sciences Institute, Newcastle University, UK; North Tyneside General Hospital, 6072Northumbria Healthcare National Health Service Foundation Trust, UK.
Stella-Maria PaddickClinical and Translational Medicine, 5994Newcastle University, Tyne and Wear, UK; Gateshead Health NHS Foundation Trust, UK.
Mina ChandraCentre of Excellence in Mental Health, 575015Atal Bihari Vajpayee Institute of Medical Sciences (formerly Post Graduate Institute of Medical Education and Research) and Dr Ram Manohar Lohia Hospital, India.
Murali KrishnaFoundation for Research and Advocacy in Mental Health (FRAMe), Mysore, India.
Bharath DuFoundation for Research and Advocacy in Mental Health (FRAMe), Mysore, India; Viveka Hospital, Mysore, India.
Kunnukattil S ShajiKerala University of Health Sciences, Thrissur, Kerala, India.
Emily FisherResearch Department of Clinical, Educational and Health Psychology, 4919University College London (UCL), London, UK.ORCID https://orcid.org/0000-0002-8110-8405
Aimee SpectorResearch Department of Clinical, Educational and Health Psychology, 4919University College London (UCL), London, UK.ORCID https://orcid.org/0000-0003-4448-8143

Funding

Medical Research Council MR/S004009/1
6 · The paper itself

Abstract

backgroundKnowledge of and attitudes towards dementia vary across countries, and for caregivers in low- and middle-income countries (LMICs), access to information can be challenging. There is an urgent need for brief, easily accessible and culturally appropriate educational courses for caregivers of persons with dementia, providing much needed information whilst addressing important psychological concepts such as stigma.

methodsAn international and multidisciplinary team developed Dementia Awareness for Caregivers (DAC) courses in four stages: (1) scoping review and module agreement, (2) development of an International template (DAC-International) containing a standardised process for adding information, (3) development of local DACs using a standardised format and (4) acceptability of courses in Brazil, India and Tanzania.

findingsThe DAC-International was developed, comprising three modules: 'What is dementia?'; 'Positive engagement' and 'Caring for someone with dementia'. Three local versions were developed from this (DAC-Brazil, DAC-India and DAC-Tanzania), where additions of country-specific information included prevalent stereotypes and the addition of culturally relevant case studies. An initial field test was conducted in each country (

conclusionsThe methods used here resulted in culturally valid and acceptable educational courses for carers of people with dementia. Future work will consist of large-scale, formal evaluations and the development of additional local courses.

Indexed as

CaregiversDementiaDeveloping CountriesHumansIndiacaregivingdementiaEducationinterventionstigma

Identifiers

PMID34886707
PMCPMC8811332

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.