ArticleHealth psychology : official journal of the Division of Health Psychology, American Psychological Association2021
Medical responsibility growth in youth with spina bifida: Neuropsychological and parenting predictors.
Article in Health psychology : official journal of the Division of Health Psychology, American Psychological Association, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- The concerns of mothers of female youth with physical disabilities in transitioning to adulthood: A qualitative study.Journal of pediatric rehabilitation medicine · 2026Article
- Neuropsychological predictors of growth in condition-related self-management skill mastery in youth with spina bifida.Journal of pediatric psychology · 2025Article
- Family factors as moderators of the association between specific cognitive domains and psychosocial, academic, and adaptive functioning outcomes in youth with spina bifida.Journal of pediatric psychology · 2025Article
- Development of inattention and executive dysfunction in youth with spina bifida: condition severity variables as predictors.Child neuropsychology : a journal on normal and abnormal development in childhood and adolescence · 2025Article
- Contextual predictors of self-management and independence trajectories in adolescents and young adults with spina bifida.Developmental medicine and child neurology · 2024Article
- Developing and Piloting an Instrument to Prioritize the Worries of Female Youth with a Physical Disability and Mothers during the Transition to Adulthood.MDM policy & practiceArticle
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Authors and funding
4 authors.
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Abstract
objectiveFor youth with spina bifida (SB) there is a growing need to understand how responsibilities for health care are transferred from family- to self-management over time. The current study examined trajectories of responsibility for medical tasks in youth with SB across adolescence, as well as executive functioning/attention and parenting behaviors as predictors of growth.
methodAs part of a larger, longitudinal study, 140 youth with SB (ages 8-15 at time 1; Mage = 11.43) reported on their responsibility for relevant medical tasks across five time points. Attention and executive functioning were assessed via performance-based and parent/teacher-report methods. Parenting behaviors consisted of acceptance, behavioral control, and psychological control and were assessed via observational and parent-report.
resultsGrowth curve analyses revealed significant increases in youth medical responsibility across all SB tasks over time. Attention, executive functioning, maternal behavioral control, and paternal psychological control emerged as predictors of growth parameters in responsibility for communicating about SB and managing health care appointments.
conclusionResults indicated that youth with SB obtain increasing responsibility for their health care over time. The transfer of responsibility for SB management may differ based on individual (i.e., the child's neuropsychological abilities) and family level (i.e., parenting behaviors) factors. Further research is needed to understand how growth in medical responsibility relates to changes in other aspects of SB self-management across development, such as medical adherence. (PsycInfo Database Record (c) 2021 APA, all rights reserved).
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