ArticleDementia (London, England)2022
Accessibility of health care experienced by persons with dementia from ethnic minority groups and formal and informal caregivers: A scoping review of European literature.
Article in Dementia (London, England), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it, 53 citations in OpenAlex.
- Barriers for access and utilization of dementia care services in Europe: a systematic review.BMC geriatrics · 2025Pooled it
- Using Design Thinking to Develop a Tool for Strengthening Nurses' Cultural Competence: Lessons Learned.Journal of transcultural nursing : official journal of the Transcultural Nursing Society · 2026Article
- Effectiveness of a Telephonic Aging Brain Care Model for Medicaid Home and Community Services for Dementia Patients and Their Caregivers.Journal of the American Geriatrics Society · 2026Article
- Continuity of care for all? Associations between migration background and personal continuity among persons aged 50 and older in Dutch primary care: a registry-based observational study.Family practice · 2025Observational
- Accessing Care Across Cultures: Qualitative Insights Into the Reality of Informal Caregivers From Ethnically Minoritised Groups.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Improving Early Dementia Detection Among Diverse Older Adults With Cognitive Concerns With the 5-Cog Paradigm: Protocol for a Hybrid Effectiveness-Implementation Clinical Trial.JMIR research protocols · 2025Article
- Understanding the impact of dementia on spousal relationships: A qualitative study with female spousal carers of people living with dementia.Dementia (London, England) · 2025Article
- Rapid review: Ten ways to improve support for minoritised informal adult carers at local government policy level to redress inequality.Public health in practice (Oxford, England) · 2024Review
- Racial and ethnic minority representation in dementia risk factor research: a scoping review of cohort studies.BMJ open · 2024Article
- Development and Evaluation of a Web-Based Platform for Personalized Educational and Professional Assistance for Dementia Caregivers: Proposal for a Mixed Methods Study.JMIR research protocols · 2024Article
- Acceptance of a Digital Assistant (Anne4Care) for Older Adult Immigrants Living With Dementia: Qualitative Descriptive Study.JMIR aging · 2024Article
- Article
- The intersection of social determinants of health and family care of people living with Alzheimer's disease and related dementias: A public health opportunity.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023Article
- Article
- Access and Use of Services by Caregivers of Older Adults: A Scoping Review of Cultural and Linguistic Diversity.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Article
- "At least we finally found out what it was": Dementia diagnosis in minoritized populations.Journal of the American Geriatrics Society · 2023Article
- Caregiving + Migrant Background = Double Jeopardy? Associations between Caregiving and Physical and Psychological Health According to Migrant Backgrounds in Norway.International journal of environmental research and public health · 2023Article
- Race and Ethnicity in Lewy Body Dementia: A Narrative Review.Journal of Alzheimer's disease : JAD · 2023Review
- Engaging older adults with a migration background to explore the usage of digital technologies in coping with dementia.Frontiers in public health · 2023Article
- Indigenous Sami Family Caregivers' Experiences With Accessing and Collaborating With Municipal Health and Care Services.Global qualitative nursing researchArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The number of persons with dementia from ethnic minority backgrounds is increasing. However, ethnic minority groups use health care services less frequently compared to the general population. We conducted a scoping review and used the theoretical framework developed by Levesque to provide an overview of the literature concerning access to health care for ethnic minority people with dementia and (in)formal caregivers. Studies mentioned barriers in (1) the ability to perceive a need for care in terms of health literacy, health beliefs and trust, and expectations; (2) the ability to seek care because of personal and social values and the lack of knowledge regarding health care options; and (3) lack of person-centered care as barrier to continue with professional health care. Studies also mentioned barriers experienced by professionals in (1) communication with ethnic minorities and knowledge about available resources for professionals; (2) cultural and social factors influencing the professionals' attitudes towards ethnic minorities; and (3) the appropriateness of care and lacking competencies to work with people with dementia from ethnic minority groups and informal caregivers. By addressing health literacy including knowledge about the causes of dementia, people with dementia from ethnic minorities and their informal caregivers may improve their abilities to access health care. Health care professionals need to strengthen their competencies in order to facilitate access to health care for this group.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.