ArticleJournal of child health care : for professionals working with children in the hospital and community2023
Barriers and facilitators to discussing parent mental health within child health care: Perspectives of parents raising a child with congenital heart disease.
Article in Journal of child health care : for professionals working with children in the hospital and community, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The trial behind it
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Who cites it
6 citing papers in PubMed, 9 citations in OpenAlex.
- Maternal and paternal perceptions of child vulnerability in children with familial mediterranean fever: a cross-sectional study.Clinical rheumatology · 2026Article
- Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study.Journal of child health care : for professionals working with children in the hospital and community · 2025Article
- Loss and Grief in Parents of Children Hospitalized for Congenital Heart Disease.Hospital pediatrics · 2025Article
- Parents of Children with Congenital Heart Disease (CHD): A Narrative Study of the Social and Clinical Impact of CHD Diagnosis on Their Role and Health.Behavioral sciences (Basel, Switzerland) · 2025Article
- Mental health-related quality of life in mothers of children with surgically repaired congenital heart disease: a 13-year longitudinal study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Overprotective parenting and its effect on development and psychosocial health in children with congenital heart disease: A systematic review.Annals of pediatric cardiologyReview
Corrections and comments
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Authors and funding
11 authors at 7 institutions in 1 country.
Funding
Abstract
This study aimed to identify barriers and facilitators to discussing parent mental health within child health care for parents of children with congenital heart disease (CHD). Seventy-nine parents of young children with CHD who received care across 40 hospitals in the United States responded to questions about barriers and facilitators to discussing their mental health with their child's health care providers. Responses were analyzed using qualitative research methods. Parents described multiple barriers: (1) belief that parent mental health support was outside the care team's scope of practice, (2) perceived expectation to "stay strong," (3) fear of negative judgment or repercussion, (4) individual preferences for communication/support, (5) desire to maintain care resources on their child, (6) perceived need to compartmentalize emotions, and (7) negative reactions to past emotional disclosure. Parents also described several facilitators: (1) confidence in the care team's ability to provide support, (2) intentional efforts by the care team to provide support, (3) naturally extroverted tendencies, and (4) developing personal connections with health care providers. It is important that health care providers normalize the impact of child illness on the family and create an environment in which parents feel comfortable discussing mental health challenges.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.