Evidence map›Paper›PMID 34876494›Full record

ArticleRespiratory care2022

Improving Access and Guideline Adherence in Pulmonary Care in Patients With Duchenne Muscular Dystrophy.

Jacob A Kaslow, Jonathan H Soslow, William B Burnette, Frank J Raucci, Tracy J Hills, Michaela G Ibach, Rita C Hebblethwaite, Kara M Arps, Andrew G Sokolow

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Respiratory care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.4field-weighted citation impact, top 40% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 5 citations in OpenAlex.

  1. Article
  2. Review
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 2 institutions in 1 country.

Jacob A KaslowDepartment of Pediatrics, Division of Pediatric Pulmonary, Vanderbilt University Medical Center, Nashville, Tennessee. jacob.a.kaslow@vumc.org.
Jonathan H SoslowDepartment of Pediatrics, Division of Pediatric Cardiology, Vanderbilt University Medical Center, Nashville, Tennessee.
William B BurnetteDivision of Pediatric Neurology, Vanderbilt University Medical Center, Nashville, Tennessee.
Frank J RaucciDivision of Pediatric Cardiology, Department of Pediatrics, Children's Hospital of Richmond at Virginia Commonwealth University, Richmond, Virginia.
Tracy J HillsDivision of Pediatric Hospital Medicine, Section of Hospice and Palliative Medicine, Vanderbilt University Medical Center, Nashville, Tennessee.
Michaela G IbachDivision of Pediatric Hospital Medicine, Section of Hospice and Palliative Medicine, Vanderbilt University Medical Center, Nashville, Tennessee.
Rita C HebblethwaiteNutrition Clinic, Department of Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee.
Kara M ArpsDepartment of Pediatric Rehabilitation Services, Vanderbilt University Medical Center, Nashville, Tennessee.
Andrew G SokolowDepartment of Pediatrics, Division of Pediatric Pulmonary, Vanderbilt University Medical Center, Nashville, Tennessee.
Vanderbilt University Medical Center · USChildren's Hospital of Richmond at VCU · US

Funding

Clinical and Translational Training Program in Pulmonary MedicineT32HL087738 · NHLBI · VANDERBILT UNIVERSITY MEDICAL CENTER · PI Lorraine B Ware · 2007 to 2026
$7.0M
Targeting Pannexin 1 as a Novel Mechanism for Arrhythmia and Fibrosis in Duchenne CardiomyopathyK08HL155852 · NHLBI · VIRGINIA COMMONWEALTH UNIVERSITY · PI RAUCCI, FRANK J · 2021 to 2025
$742k
NHLBI NIH HHS K08 HL155852NHLBI NIH HHS T32 HL087738
6 · The paper itself

Abstract

backgroundDuchenne muscular dystrophy (DMD) is a devastating, progressive neuromuscular disease that results in cardiopulmonary failure and death. In 2018, the DMD Care Considerations guidelines were updated to improve the multidisciplinary approach to care and promote early respiratory management. We sought to evaluate the impact of a multidisciplinary clinic on access to pulmonary care and adherence to respiratory care guidelines.

methodsUtilizing retrospective data, we assessed for pulmonary care between 2016-2019 and congruence with guidelines from March 2018-February 2019. Using a standardized visit protocol, subjects were monitored for adherence to pulmonary function testing (PFT) and polysomnography (PSG) recommendations.

resultsOf the 84 subjects with DMD, only 51.2% had prior pulmonary involvement, and approximately one-third were seen in the year prior to clinic onset. Only 23% of subjects with a pulmonary referral completed this visit. After clinic initiation, the average age of a subject's first pulmonary contact decreased from 11.8 y to 7.9 y (

conclusionsDevelopment of a multispecialty clinic expanded access to pulmonary care and evaluation in subjects with DMD. Continued care in this clinic will allow a better understanding of barriers to access and the opportunity to monitor long-term pulmonary health.

Indexed as

Muscular Dystrophy, DuchenneGuideline AdherenceHumansPolysomnographyRespiratory Function TestsRetrospective StudiesDuchenne muscular dystrophylung function testingneuromuscular disorderspolysomnographypulmonologyspirometry

Identifiers

PMID34876494
PMCPMC8984916
OpenAlexW4200619235

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.