ArticleNursing ethics2022
Caregiver decision-making concerning involuntary treatment in dementia care at home.
Article in Nursing ethics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 29 citations in OpenAlex.
- Barriers and Facilitators for Caregivers Providing Involuntary Oral Care to Individuals With Dementia: A Qualitative Literature Review.International journal of dental hygiene · 2026Review
- Family caregivers' perspectives on ethical challenges in dementia care.Nursing ethics · 2026Article
- Nursing home nurses' experiences of psychological resilience development in dementia care: a qualitative descriptive study.BMC nursing · 2026Article
- Routinized violence: examining long-term residential care workers' perspectives on involuntary treatment.The Gerontologist · 2026Article
- A Preliminary Exploration of the Behavioural Criteria of Ethical Care With Dementia.Nursing open · 2026Review
- Article
- Living well with dementia: a qualitative interview study on family caregivers' call for more person- and family-centered dementia support.BMC geriatrics · 2025Article
- Developing a Set of Key Principles for Care Planning Within Older Adult Care Homes: A Modified Delphi Survey.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Barriers and Facilitators Concerning Involuntary Oral Care for Individuals with Dementia: A Qualitative Study.International journal of environmental research and public health · 2025Article
- Developing a set of key principles for care planning within older adult care homes: study protocol for a modified Delphi survey.BMJ open · 2025Article
- Reliability and validity of the Chinese version of the Gatos Clinical Test questionnaire in patients with severe dementia.Frontiers in psychology · 2025Article
- Blurred lines: Ethical challenges related to autonomy in home-based care.Nursing ethics · 2024Article
- Embracing Reablement as an Essential Support Approach for Dementia Care in the 21Journal of multidisciplinary healthcare · 2024Article
- District nurses' experiences with involuntary treatment in dementia care at home: a qualitative descriptive study.BMC nursing · 2023Article
- Who's Involved? Case Reports on Older Adults' Alcohol and Tobacco Use in Dutch Residential Care Facilities.Qualitative health research · 2023Article
- Effect of Types of Dementia Care on Quality of Life and Mental Health Factors in Caregivers of Patients with Dementia: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2023Article
- Decision-Making concerning Involuntary Oral Care for Older Individuals with Dementia.International journal of environmental research and public health · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 3 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDementia care at home often involves decisions in which the caregiver must weigh safety concerns with respect for autonomy. These dilemmas can lead to situations where caregivers provide care against the will of persons living with dementia, referred to as involuntary treatment. To prevent this, insight is needed into how family caregivers of persons living with dementia deal with care situations that can lead to involuntary treatment.
objectiveTo identify and describe family caregivers' experiences regarding care decisions for situations that can lead to involuntary treatment use in persons living with dementia at home. RESEARCH
designA qualitative descriptive interview design. Data were analysed using the Qualitative Analysis Guide of Leuven. PARTICIPANTS AND RESEARCH CONTEXT: A total of 10 family caregivers providing care for 13 persons living with dementia participated in in-depth semi-structured interviews. Participants were recruited by registered nurses via purposive sampling. ETHICAL CONSIDERATION: The study protocol was approved by the Ethics Committee of the University Hospitals Leuven and the Medical Ethical Test Committee Zuyderland.
findingsFamily caregivers experience the decision-making process concerning care dilemmas that can lead to involuntary treatment as complicated, stressful and exhausting. Although they consider safety and autonomy as important values, they struggle with finding the right balance between them. Due to the progressive and unpredictable nature of dementia, they are constantly seeking solutions while they adapt to new situations. Family caregivers feel responsible and experience social pressure for the safety of persons living with dementia. They may be blamed if something adverse happens to the persons living with dementia, which increases an already stressful situation. Their experience is influenced by characteristics of the care triad (persons living with dementia, professional and family caregivers) such as practical and emotional support, knowledge, and previous experiences. DISCUSSION AND
conclusionTo prevent involuntary treatment, professionals need to proactively inform family caregivers, and they need to support each other in dealing with complex care situations.
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Registered trials
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