Evidence map›Paper›PMID 34865887›Full record

ArticlePatient education and counseling2022

Patients' lived experiences and recommendations for enhanced awareness and use of integrative oncology services in cancer care.

Dana M Womack, Rosemary Kennedy, Steven R Chamberlin, Angela L Rademacher, Carolyn D Sliney

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Patient education and counseling, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.6field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 8 citations in OpenAlex.

  1. Trial
  2. Article
  3. Review
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 1 institution in 1 country.

Dana M WomackDepartment of Medical Informatics & Clinical Epidemiology, Oregon Health & Science University, Portland, USA. Electronic address: womacda@ohsu.edu.
Rosemary KennedyHealth Informatics, Connect America, Philadelphia, USA.
Steven R ChamberlinDepartment of Medical Informatics & Clinical Epidemiology, Oregon Health & Science University, Portland, USA.
Angela L RademacherKnight Cancer Center, Oregon Health & Science University, Portland, USA.
Carolyn D SlineyOffice of Visitors and Volunteers, Oregon Health & Science University, Portland, USA.
Oregon Health & Science University · US

Funding

NW Center of Excellence & K12 in Patient Centered Learning Health Systems ScienceK12HS026370 · AHRQ · OREGON HEALTH & SCIENCE UNIVERSITY · PI EDEN, KAREN BEEKMAN, GUISE, JEANNE-MARIE · 2018 to 2022
$4.0M
AHRQ HHS K12 HS026370
6 · The paper itself

Abstract

backgroundConsuming educational content, adhering to treatment plans and managing symptoms and side-effects can be overwhelming to new oncology patients.

objectiveThe purpose of this study is to engage patients in conceptualization of enhanced clinic processes and digital health tools to support awareness and use of integrative oncology services. PATIENT INVOLVEMENT: We engaged patients in participatory design to understand lived experiences surrounding use of integrative oncology services during and after conventional cancer treatment.

methodsTen participatory design sessions were held with individual participants. Sessions began with patient story telling regarding diagnosis and paths to awareness and use of integrative oncology services. We then reviewed prototype mobile app screens to solicit feedback regarding digital health functionality to support patient navigation of symptom-alleviating options.

resultsOncology patients are active participants in the management of symptoms and side effects. Patients who utilize yoga, acupuncture, and massage report a need for earlier patient education about these services. Patients express interest in digital health tools to match symptoms to options for relief, provide access to searchable information, and facilitate streamlined access to in-person and remote services. DISCUSSION: Patients co-produce wellbeing by seeking solutions to daily challenges and consuming educational content. Clinics can collaborate with patients to identify high priority needs and challenges. PRACTICAL VALUE: Active collaboration with patients is needed to identify unmet needs and guide development of clinic processes and digital health tools to enhance awareness and use of IO services in conventional cancer care.

fundingThe principal investigator was supported by the U.S. Agency for Healthcare Research and Quality (AHRQ K12HS026370). The content of this article is solely the responsibility of the authors and does not necessarily represent the official views of AHRQ. The sponsor had no role in the study design, data collection, analysis, report writing, or decision to submit for publication.

Indexed as

Integrative OncologyNeoplasmsDelivery of Health CareHumansMedical OncologyHuman-Centered designIntegrative oncologyPatient educationPatient engagement

Identifiers

PMID34865887
PMCPMC9888321
OpenAlexW3216248123

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.