ArticleQualitative health research2022
Qualitative Data Sharing: Participant Understanding, Motivation, and Consent.
Article in Qualitative health research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed.
- [Artificial intelligence and cardiovascular biobanks: Shared technological promise and ethical responsibility].Revista medica del Instituto Mexicano del Seguro Social · 2026Article
- Navigating data sharing in research.American journal of human genetics · 2026Review
- Good, bad, different or something else? A scoping review of the convictions, conventions and developments around quality in qualitative research.Royal Society open science · 2025Article
- Developing a Data Note reporting guideline for qualitative health and social care research datasets (the DeNOTE study): A study protocol.Health psychology and behavioral medicine · 2025Article
- Lessons Learned Establishing the Palliative Care Research Cooperative's Qualitative Data Repository.Journal of pain and symptom management · 2024Article
- Exchanging words: Engaging the challenges of sharing qualitative research data.Proceedings of the National Academy of Sciences of the United States of America · 2023Article
- The replication crisis has led to positive structural, procedural, and community changes.Communications psychology · 2023Review
- A one-size-fits-all approach to data-sharing will not suffice in lifecourse research: a grounded theory study of data-sharing from the perspective of participants in a 50-year-old lifecourse study about health and development.BMC medical research methodology · 2023Article
- Potentially Identifying Variables Reported in 100 Qualitative Health Research Articles: Implications for Data Sharing and Secondary Analysis.Forum, qualitative social research · 2023Article
- Responsible Sharing of Qualitative Research Data: Insights From a Pioneering Project in the United States.International journal of qualitative methodsArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
Expectations to share data underlying studies are increasing, but research on how participants, particularly those in qualitative research, respond to requests for data sharing is limited. We studied research participants' willingness to, understanding of, and motivations for data sharing. As part of a larger qualitative study on abortion reporting, we conducted interviews with 64 cisgender women in two states in early 2020 and asked for consent to share de-identified data. At the end of interviews, we asked participants to reflect on their motivations for agreeing or declining to share their data. The vast majority of respondents consented to data sharing and reported that helping others was a primary motivation for agreeing to share their data. However, a substantial number of participants showed a limited understanding of the concept of "data sharing." Additional research is needed on how to improve participants' understanding of data sharing and thus ensure fully informed consent.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.