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ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2022

Mapping the Haem-A-QoL to the EQ-5D-5L in patients with hemophilia.

Richard Huan Xu, Dong Dong, Nan Luo, Eliza Lai-Yi Wong, Renchi Yang, Junshuai Liu, Huiqin Yuan, Shuyang Zhang

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Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Article
  5. Health-related quality of life and associated factors in elderly individuals with dyslipidemia in rural Northern China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
    Article
  6. Article
  7. Article
  8. Article
  9. Mapping the Peds QLFrontiers in public health · 2023
    Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Richard Huan Xu *Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, Hong Kong SAR, China.
Dong Dong *JC School of Public Health and Primary Care, The Chinese University of Hong Kong, Hong Kong SAR, China. dongdong@cuhk.edu.hk.ORCID http://orcid.org/0000-0001-9784-6472
Nan LuoSaw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore.
Eliza Lai-Yi WongJC School of Public Health and Primary Care, The Chinese University of Hong Kong, Hong Kong SAR, China.
Renchi YangThrombosis and Hemostasis Center, Institute of Hematology and Blood Diseases Hospital, Chinese Academy of Medical Sciences and Peking Union Medical College, Tianjin, China.
Junshuai LiuBeijing Society of Rare Disease Clinical Care and Accessibility, Beijing, China.
Huiqin YuanSchool of International Pharmaceutical Business, China Pharmaceutical University, Nanjing, Jiangsu, China.
Shuyang ZhangDepartment of Cardiology, Peking Union Medical College Hospital, Peking Union Medical College and Chinese Academy of Medical Science, Beijing, 100730, China. shuyangzhang103@nrdrs.org.

Funding

Center for Rare Diseases Research 2016ZX310174-4National Key Research and Development Program of China 2016YFC0901500
6 · The paper itself

Abstract

objectiveThis study's objective was to develop an algorithm that mapping the Haem-A-QoL scores to EQ-5D-5L utility scores in patients with hemophilia in China.

methodsA national sample of 862 patients with hemophilia completed both the EQ-5D-5L and Haem-A-QoL instruments. Eight regression models were selected to develop the mapping algorithm, they were: the ordinary least squares, general linear regression, Tobit regression, censored least absolute deviation, mixture beta regression, adjusted limited dependent variable mixture, the two-part, and robust MM-estimator model. Root mean squared error (RMSE), mean absolute error (MAE), and R-square (R

resultsBased on RMSE, MAE, and R

conclusionsOur mapping algorithm bolsters the calculation of QALYs while conducting an economic evaluation of hemophilia-related interventions when only Haem-A-QoL data are available. The external validity of the algorithm should be further assessed in the other populations.

Indexed as

Hemophilia AQuality of LifeAlgorithmsHemeHumansQuality-Adjusted Life YearsSurveys and QuestionnairesHemeEQ-5DHaem-A-QoLHemophiliaMappingPrediction

Identifiers

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Read underepoch 390

Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.