ArticlePloS one2021
"It's extremely hard but it's not a burden": A qualitative study of family caregiving for people living with dementia in Vietnam.
Article in PloS one, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 6 of them syntheses that pooled it.
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Who cites it
33 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- Dementia literacy and awareness of risk reduction: A systematic review of South Asian and Southeast Asian regions.Australasian journal on ageing · 2025Pooled it
- Effectiveness of Interventions to Support Carers of People With Dementia in Low- and Middle-Income Countries: A Systematic Review and Meta-Analysis.International journal of geriatric psychiatry · 2025Pooled it
- Meta-synthesis of qualitative research on family caregiving experiences for individuals with cognitive impairment: a systematic review.Frontiers in public health · 2025Pooled it
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- Challenges in Help-Seeking Behaviors among Rural Older People Mitigated through Family Physician-Driven Outreach: A Systematic Review.International journal of environmental research and public health · 2022Pooled it
- Community health worker and family support for addiction treatment services.Substance abuse treatment, prevention, and policy · 2026Trial
- Testing the Efficacy of a Culturally Adapted Family Dementia Caregiver Intervention (REACH VN): Results From a Cluster Randomized Controlled Trial in Northern Vietnam.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2025Trial
- Mobile App Psychoeducation for Dementia Caregivers In Vietnam: A Randomized Controlled Trial.Journal of multidisciplinary healthcare · 2025Trial
- A qualitative evaluation of the Resources for Enhancing Alzheimer's Caregiver Health in Vietnam (REACH VN) intervention: a multi-stakeholder perspective.Aging & mental health · 2026Article
- Views on dementia among informal caregivers of people with dementia: A scoping review and thematic analysis of qualitative studies.Journal of Alzheimer's disease : JAD · 2026Article
- The experience and needs of informal caregivers of people with dementia in rural Vietnam: a qualitative study.Annals of medicine · 2025Article
- Filial Care in Transition: Linguistic and Emotional Patterns in Online Discourse Among Emerging Adults in Taiwan.Behavioral sciences (Basel, Switzerland) · 2025Article
- Knowledge and attitudes about dementia among nursing students in Vietnam: a cross-sectional study.Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society · 2025Article
- Cognitive function in Vietnam: the effects of war exposure and social engagement.Aging & mental health · 2025Article
- Current and Future Replacement and Opportunity Costs of Family Caregiving for Older Americans With and Without Dementia.Innovation in aging · 2025Article
- Burden and risk factors of Alzheimer's disease and other dementias in Vietnam from 1990 to 2021 - A comprehensive analysis from global burden disease.Cerebral circulation - cognition and behavior · 2025Article
- Non-medical costs incurred by critically ill patients with dengue, sepsis and tetanus within a major referral hospital in Southern Vietnam: a cost of illness study.BMJ public health · 2025Article
- Knowledge, Attitudes and Confidence in Providing Dementia Care to Older Adults Among Nurses Practicing in Hanoi, Vietnam: A Cross-Sectional Study.International journal of older people nursing · 2024Article
- Exploration of family caregivers' experiences on coping in dementia care in Ghana: a phenomenological study.BMC psychology · 2024Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundVietnam is one of the fastest-aging countries in the world with a rising number of people with Alzheimer's disease and related dementias (ADRD). Families in Vietnam provide most of the care for persons living with dementia, yet our understanding of their experiences and needs is limited. This study examined the family caregiving experience in a semi-rural region outside of central Hanoi from the perspectives of family caregivers and other key informants. MATERIALS: Semi-structured interviews were conducted with 21 key stakeholders (12 family caregivers and 9 healthcare providers and community leaders). A descriptive, thematic analysis was conducted.
resultsQualitative data analysis revealed four themes related to the family caregiving experience: 1) perceptions of dementia symptoms as a normal part of aging rather than a disease, 2) caregiving as a moral and expected familial obligation, 3) patterns of caregiving that are heavily influenced by both gender and sibling order, and 4) multiple challenges or hardships, including time constraints, loss of income, increased social isolation, a toll on their perceived physical health, and emotional distress. Caregivers rejected the notion that caregiving was a "burden" and expressed their distress through terms such as frustration, sadness, and exhaustion.
conclusionsIn this low-resource setting, the stress of family caregiving may be amplified by lack of community resources, cultural stigma discouraging outside help-seeking, and economic impact of care provision. The study highlights the vulnerability and predicament of Vietnamese women who often face multiple challenges in their caregiving role as well as the urgent need for the development of community-based programs and supports.
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