Evidence map›Paper›PMID 34842615›Full record

ArticleInternational journal of neonatal screening2021

Towards a Newborn Screening Common Data Model: The Utah Newborn Screening Data Model.

David Jones, Jianyin Shao, Heidi Wallis, Cody Johansen, Kim Hart, Marzia Pasquali, Ramkiran Gouripeddi, Andreas Rohrwasser

Abstract read
In one paragraph

Article in International journal of neonatal screening, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Article
  5. The Editor's Choice for Issue 4, Volume 7.International journal of neonatal screening · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

David JonesCenters for Disease Control and Prevention, Atlanta, GA 30333, USA.
Jianyin ShaoUtah Public Health Laboratory, Salt Lake City, UT 84129, USA.
Heidi WallisUtah Public Health Laboratory, Salt Lake City, UT 84129, USA.
Cody JohansenUnite Us, New York, NY 10007, USA.
Kim HartUtah Public Health Laboratory, Salt Lake City, UT 84129, USA.
Marzia PasqualiDepartment of Pathology, School of Medicine, University of Utah and ARUP Laboratories, Salt Lake City, UT 84108, USA.
Ramkiran GouripeddiDepartment of Biomedical Informatics, School of Medicine, University of Utah, Salt Lake City, UT 84108, USA.
Andreas RohrwasserUtah Public Health Laboratory, Salt Lake City, UT 84129, USA.

Funding

Utah Center for Clinical and Translational ScienceUL1TR002538 · NCATS · UNIVERSITY OF UTAH · PI HESS, RACHEL, MAJERSIK, JENNIFER JUHL · 2018 to 2022
$26.0M
NCATS NIH HHS UL1 TR002538
6 · The paper itself

Abstract

As newborn screening programs transition from paper-based data exchange toward automated, electronic methods, significant data exchange challenges must be overcome. This article outlines a data model that maps newborn screening data elements associated with patient demographic information, birthing facilities, laboratories, result reporting, and follow-up care to the LOINC, SNOMED CT, ICD-10-CM, and HL7 healthcare standards. The described framework lays the foundation for the implementation of standardized electronic data exchange across newborn screening programs, leading to greater data interoperability. The use of this model can accelerate the implementation of electronic data exchange between healthcare providers and newborn screening programs, which would ultimately improve health outcomes for all newborns and standardize data exchange across programs.

Indexed as

common data modelelectronic data exchangeinteroperabilityLIMSNBSnewborn screeningnewborn screening laboratory information management systemstandards

Identifiers

PMID34842615
PMCPMC8628929

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.