Evidence map›Paper›PMID 34841909›Full record

ArticleThe Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association2023

Isolation, Uncertainty and Treatment Delays: Parents' Experiences of Having a Baby with Cleft Lip/Palate During the Covid-19 Pandemic.

Bruna Costa, Danielle McWilliams, Sabrina Blighe, Nichola Hudson, Matthew Hotton, Marc C Swan, Nicola Marie Stock

Open access · greenAbstract read
In one paragraph

Article in The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
2.6field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 24 citations in OpenAlex.

  1. Impact of Pandemic-Related Social Restrictions on Language and Speech Development in Children with Cleft Lip and/or Palate at 18-24 Months.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Article
  2. Cleft Lip and Palate Research in the United Kingdom: Advances in Clinical Psychological Knowledge and Future Directions.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Review
  3. Caring for a Child with a Cleft Lip and/or Palate: A Narrative Review.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2025
    Review
  4. Article
  5. Article
  6. The Impact of the Covid-19 Pandemic on Cleft Lip and Palate Service Delivery for New Families in the United Kingdom: Medical and Community Service Provider Perspectives.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2023
    Article
  7. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 1 country.

Bruna CostaCentre for Appearance Research, 1981University of the West of England, Bristol, UK.ORCID 0000-0001-8275-695X
Danielle McWilliamsCentre for Appearance Research, 1981University of the West of England, Bristol, UK.ORCID 0000-0002-1766-4175
Sabrina BligheSpires Cleft Centre, Level 2 Children's Hospital, 11269John Radcliffe Hospital, Oxford, UK.ORCID 0000-0003-1724-2201
Nichola HudsonSpires Cleft Centre, Salisbury District Hospital, Salisbury, UK.
Matthew HottonSpires Cleft Centre, Level 2 Children's Hospital, 11269John Radcliffe Hospital, Oxford, UK.
Marc C SwanSpires Cleft Centre, Children's Hospital, 11269John Radcliffe Hospital, Oxford, UK.
Nicola Marie StockCentre for Appearance Research, Bristol, UK.ORCID 0000-0002-1285-691X
John Radcliffe Hospital · GBUniversity of the West of England · GBSalisbury District Hospital · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesPrevious literature finds that having a child with a cleft lip and/or palate (CL/P) may pose social and emotional challenges for parents. For parents of children born during the Covid-19 pandemic, such challenges may be heightened. Further, novel demands brought about by the pandemic could have caused additional hardships. The aim of this study was to describe the impact of the pandemic on new parents through qualitative exploration of their experiences.

designSemi-structured interviews were conducted with 14 parents of children born in the United Kingdom with CL/P between January and June 2020, around the start of the pandemic. Data were analysed using inductive thematic analysis.

resultsThree themes, with sub-themes, were identified. The first theme, "

conclusionsA range of increased and additional psychosocial impacts for parents were identified, along with several coping strategies, utilization of social support, and the positive aspects of their experiences. As the pandemic continues, close monitoring of families affected by CL/P remains imperative, particularly for those at risk of emotional distress.

Indexed as

Cleft LipCleft PalateCOVID-19Health Services AccessibilityChildDelivery of Health CareHumansPandemicsPhysical DistancingPsychological DistressTime-to-TreatmentUncertaintycleft lip and palateCovid-19parentspsychosocial wellbeingsurgical prioritisationtreatment delay

Identifiers

PMID34841909
PMCPMC9218610
OpenAlexW3215619526

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.