Evidence map›Paper›PMID 34837994›Full record

ArticleBMC geriatrics2021

Until death do us part Adult children's perspective of their parents' transition from living at home to moving into a nursing home and the time after death.

Christina Bökberg, Jonas Sandberg

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in BMC geriatrics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02708498 (Implementation of Knowledge-Based Palliative Care for Frail Older Persons in Nursing Homes), which is not on this map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.1field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02708498 nacompletednot on this map

Implementation of Knowledge-Based Palliative Care for Frail Older Persons in Nursing Homes

TypeinterventionalSponsorLund UniversityRan2015 to 2017Enrolled1,151ConditionsAgeingArmsEducational Intervention
3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 5 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors at 2 institutions in 1 country.

Christina BökbergDepartment of Health Sciences, Faculty of Medicine, Lund University, P.O. Box 157, SE-221 00, Lund, Sweden. christina.bokberg@med.lu.se.ORCID 0000-0002-0821-1959
Jonas SandbergDepartment of Nursing Science, Sophiahemmet University, Stockholm, Sweden.ORCID 0000-0003-0566-4685
Lund University · SESophiahemmet University College · SE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAdult children are often key carers of frail older parents providing care for a long period of time in different care contexts. However, research concerning adult children's caregiving experiences, from providing home-based care to facing the death of a parent in a nursing home is sparse. Thus, the aim was to explore the transition from living at home to moving into and living in a nursing home and the time after death from the perspective of next of kin to an older person.

methodsA qualitative design using individual interviews with 15 adult children of older persons. The text was analysed using inductive content analysis.

resultsOne main category was identified, until death do us part. With three generic categories, living at home, living at a nursing home and time after death, and eight sub-categories. The results describe the transition when an older person lives at home and moves into and lives in a nursing home and the time after death from the perspective of next of kin.

conclusionThis study highlights many examples of tasks that adult children provide over a long period of time and in different care contexts since they felt that professional care was unable to provide safe and secure care for their older parents. It also highlights the importance for staff to recognize the support that next of kin provide. Furthermore, the study reveal that staff do not offer the relief that they are obligated to provide, to enable next of kin coping with this strenuous transition in life. First after the parent died, there was time for relief since the worrying and the doing of practical things for the parent had stopped.

trial registrationCurrent Controlled Trials NCT02708498 ; date of registration: 26 February 2016.

Indexed as

Adult ChildrenHome Care ServicesAgedAged, 80 and overCaregiversHumansNursing HomesParentsQualitative ResearchFamily carerHome careNext of kinNursing homeOlder personsTransition

Identifiers

PMID34837994
PMCPMC8626904
OpenAlexW3215776440

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.