ArticleNutrients2021
Special Low Protein Foods Prescribed in England for PKU Patients: An Analysis of Prescribing Patterns and Cost.
Open access · goldAbstract read
In one paragraph
Article in Nutrients, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed, 1 pooled it
2.4field-weighted citation impact, top 11% of its field
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 22 citations in OpenAlex.
- The Economic and Humanistic Burden of Phenylketonuria Among Patients and Their Caregivers: A Systematic Literature Review.PharmacoEconomics - open · 2026Pooled it
- Efficacy of a New Low-Protein Multimedia Diet App for PKU.Nutrients · 2022Trial
- Article
- Article
- Nutritional and Therapeutic Strategies in Paediatric Phenylketonuria: A Narrative Literature Review.Nutrients · 2026Review
- Assessing the nutritional value and health risks of special low‑protein foods: narrative review.Orphanet journal of rare diseases · 2026Review
- Nutritional knowledge of the phenylketonuria diet among healthcare providers in Saudi Arabia.Saudi medical journal · 2025Article
- UK Patient Access to Low-Protein Prescription Foods in Phenylketonuria (PKU): An Uneasy Path.Nutrients · 2025Article
- Phenylketonuria as an Adherence Disease.Patient preference and adherence · 2025Review
- Insurance Reimbursement for Special Foods and Phenylalanine Levels in Patients With PKU in China.JAMA network open · 2024Article
- Investigation of the relationship between phenylalanine in venous plasma and capillary blood using volumetric blood collection devices.JIMD reports · 2023Article
- Adult PKU Clinics in the UK-Users' Experiences and Perspectives.Nutrients · 2023Article
- Expert Consensus on the Long-Term Effectiveness of Medical Nutrition Therapy and Its Impact on the Outcomes of Adults with Phenylketonuria.Nutrients · 2023Article
- Professional activity, gender and disease-related emotions: The impact on parents' experiences in caring for children with phenylketonuria.Molecular genetics and metabolism reports · 2023Article
- Observational
- Article
- The Challenges and Dilemmas of Interpreting Protein Labelling of Prepackaged Foods Encountered by the PKU Community.Nutrients · 2022Article
- The Impact of the Quality of Nutrition and Lifestyle in the Reproductive Years of Women with PKU on the Long-Term Health of Their Children.Nutrients · 2022Review
- Dietetic Management of Adults with Phenylketonuria (PKU) in the UK: A Care Consensus Document.Nutrients · 2022Article
- Provision and Supervision of Food and Protein Substitute in School for Children with PKU: Parent Experiences.Nutrients · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
32 authors at 20 institutions in 2 countries.
Georgina WoodFaculty of Health, Education & Life Sciences, Birmingham City University, City South Campus, Westbourne Road, Edgbaston, Birmingham B15 3TN, UK.ORCID 0000-0002-8673-4368
Alex PintoDietetic Department, Birmingham Women's and Children's Hospital, Steelhouse Lane, Birmingham B4 6NH, UK.
Sharon EvansDietetic Department, Birmingham Women's and Children's Hospital, Steelhouse Lane, Birmingham B4 6NH, UK.ORCID 0000-0002-7654-3621
Anne DalyDietetic Department, Birmingham Women's and Children's Hospital, Steelhouse Lane, Birmingham B4 6NH, UK.ORCID 0000-0003-2579-8699
Sandra AdamsRoyal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne NE1 4LP, UK.
Susie CostelloeRoyal Devon & Exeter NHS Foundation Trust, Barrack Rd, Exeter EX2 5DW, UK.
Joanna GribbenGuy's and St Thomas' NHS Foundation Trust, London SE1 7EU, UK.
Charlotte EllertonUniversity College London Hospitals NHS Foundation Trust, National Hospital for Neurology & Neurosurgery, Queen Square, London WC1N 3BG, UK.
Anita EmmUniversity Hospital Southampton NHS Foundation Trust, Tremona Road, Southampton SO16 6YD, UK.
Sarah FirmanGuy's and St Thomas' NHS Foundation Trust, London SE1 7EU, UK.
Suzanne FordNorth Bristol NHS Trust, Southmead Road, Bristol BS10 5NB, UK.
Moira FrenchUniversity Hospitals of Leicester NHS Trust, Infirmary Square, Leicester LE1 5WW, UK.
Lisa GaffCambridge University Hospitals NHS Foundation Trust, Hills Road, Cambridge CB2 0QQ, UK.
Emily GiulianoNorthamptonshire Healthcare NHS Foundation Trust, St Mary's Hospital, London Road, Kettering NN15 7PW, UK.
Melanie HillSheffield Teaching Hospitals NHS Foundation Trust, Herries Road, Sheffield S5 7AU, UK.
Inderdip HunjanBradford Teaching Hospitals NHS Foundation Trust, Duckworth Lane, Bradford BD9 6RJ, UK.
Camille NewbyBristol Royal Hospital for Children, Bristol BS2 8BJ, UK.
Allison MackenzieRoyal Derby Hospital, Uttoxter Road, Derby DE22 3NE, UK.
Rachel PereiraNorfolk and Norwich University Hospital, Colney Lane, Norwich NR4 7UY, UK.
Celine PrescottCambridge University Hospitals NHS Foundation Trust, Hills Road, Cambridge CB2 0QQ, UK.
Louise RobertsonUniversity Hospitals Birmingham NHS Foundation Trust, Queen Elizabeth Hospital, Birmingham B15 2TH, UK.
Heidi SeabertSomerset NHS Foundation Trust, Parkfield Drive, Taunton TA1 5DA, UK.
Rachel SkeathGreat Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond Street, London WC1N 3JH, UK.
Simon TapleyUniversity Hospitals Bristol & Weston NHS Foundation Trust, Marlborough St, Bristol BS1 3NU, UK.
Allyson TerryAlder Hey Children's NHS Foundation Trust, E Prescot Road, Liverpool L12 2AP, UK.
Alison TookeNottingham University Hospitals NHS Trust, Queen's Medical Centre Campus, Derby Road, Nottingham NG7 2UH, UK.
Karen van WykRoyal Manchester Children's Hospital, Oxford Road, Manchester M13 9WL, UK.
Fiona J WhiteRoyal Manchester Children's Hospital, Oxford Road, Manchester M13 9WL, UK.ORCID 0000-0003-4936-1029
Lucy WhiteSheffield Children's NHS Foundation Trust, Clarkson St, Broomhall, Sheffield S10 2TH, UK.
Alison WoodallSalford Royal NHS Foundation Trust, Stott Lane, Salford M6 8HD, UK.
Júlio César RochaNutrition & Metabolism, NOVA Medical School, Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Campo Mártires da Pátria 130, 1169-056 Lisbon, Portugal.ORCID 0000-0002-4977-8345
Anita MacDonaldDietetic Department, Birmingham Women's and Children's Hospital, Steelhouse Lane, Birmingham B4 6NH, UK.
Birmingham Children's Hospital · GBCambridge University Hospitals NHS Foundation Trust · GBGuy's and St Thomas' NHS Foundation Trust · GBRoyal Manchester Children's Hospital · GBAlder Hey Children's NHS Foundation Trust · GBBirmingham City University · GBBradford Teaching Hospitals NHS Foundation Trust · GBBristol Royal Hospital for Children · GBGreat Ormond Street Hospital for Children NHS Foundation Trust · GBNorfolk and Norwich University Hospital · GBNorth Bristol NHS Trust · GBNottingham University Hospitals NHS Trust · GBRoyal Derby Hospital · GBRoyal Devon & Exeter NHS Foundation Trust · GBRoyal Victoria Infirmary · GBSalford Royal NHS Foundation Trust · GBSheffield Children's NHS Foundation Trust · GBSheffield Teaching Hospitals NHS Foundation Trust · GBSt Mary's Hospital · GBTaunton & Somerset NHS Foundation Trust · GB
Funding
No grant is acknowledged in the PubMed record.
Abstract
Patients with phenylketonuria (PKU) are reliant on special low protein foods (SLPFs) as part of their dietary treatment. In England, several issues regarding the accessibility of SLPFs through the national prescribing system have been highlighted. Therefore, prescribing patterns and expenditure on all SLPFs available on prescription in England (
Indexed as
Diet, Protein-RestrictedPractice Patterns, Physicians'Costs and Cost AnalysisDietary ProteinsEnglandFood LabelingFoods, SpecializedGuidelines as TopicHumansPhenylketonuriasState MedicineDietary ProteinscostsEnglandphenylketonuriaprescribing patternsspecial low protein foods
Identifiers
What OpenQuestion holds
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LicenceCC BY
Read underepoch 390
Registered trials
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.