ArticleInternational journal of environmental research and public health2021
"Nobody Seems to Know Where to Even Turn To": Barriers in Accessing and Utilising Dementia Care Services in England and The Netherlands.
Article in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
26 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- The experiences of living with dementia within an under-served geographical area: a systematic review and qualitative synthesis.Age and ageing · 2026Pooled it
- Mind the gap: a systematic review of barriers, facilitators, and experiences of care transitions for people living with dementia and their informal caregivers.The Gerontologist · 2026Pooled it
- Access to healthcare services and adherence to treatments for people with dementia among ethnic minority groups: a scoping review.Frontiers in dementia · 2026Pooled it
- Barriers for access and utilization of dementia care services in Europe: a systematic review.BMC geriatrics · 2025Pooled it
- Challenges and needs in dementia care: people with dementia and family caregivers' experiences from diagnosis to follow-up in Swedish primary care: a qualitative study.Scandinavian journal of primary health care · 2026Article
- Dementia and Cognitive Impairment in the Farming Community. A Preliminary Qualitative Study of Carers' Perceptions of Risks and Barriers to Care.The Australian journal of rural health · 2026Article
- The growing potential for multidisciplinary support and technology to enhance person-centred dementia care: a UK and US perspective.Frontiers in dementia · 2026Article
- Referrals to allied health professionals for people with dementia: an analysis of general practitioner data from two Australian primary health networks.Family medicine and community health · 2025Article
- Article
- Supporting a Family Member with Dementia to Live at Home: The Experiences of Caregivers.Healthcare (Basel, Switzerland) · 2025Article
- Priority setting in dementia palliative care research for people living with dementia and carers: A mixed methods consensus study.Palliative care and social practice · 2025Article
- Exploring the Delivery and Management of Specialised Post-Diagnostic Care and Support in Young-Onset Dementia: A Cross-Sectional Study.Health services insights · 2025Article
- Mapping the evidence on dementia care pathways - A scoping review.BMC geriatrics · 2024Article
- Understandings and Perceived Benefits of Outdoor-Based Support for People Living with Dementia.International journal of environmental research and public health · 2024Article
- A new model to understand the complexity of inequalities in dementia.International journal for equity in health · 2024Article
- Operationalising the Recovery College model with people living with dementia: a realist review.Aging & mental health · 2024Review
- Barriers to accessing and receiving mental health care for paid and unpaid carers of older adults.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Co-producing a board game to learn and engage about dementia inequalities: First impacts on knowledge in the general population.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Enhancing post-diagnostic care in Australian memory clinics: Health professionals' insights into current practices, barriers and facilitators, and desirable support.Dementia (London, England) · 2024Article
- Forward with Dementia: process evaluation of an Australian campaign to improve post-diagnostic support.BMC health services research · 2023Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAccessing post-diagnostic care can be difficult for people with dementia and their informal carers. Little is known, however, about the determinants of barriers to access, and how these might vary between countries. The aim of this study was to explore potential inequalities in access to formal dementia care services between England and the Netherlands, specifically from more disadvantaged areas.
methodsThis was a mixed-methods study, involving semi-structured qualitative interviews and a carer questionnaire. People with dementia and informal carers were recruited by clinicians. The postal survey was co-produced with people with dementia, informal carers, and health care professionals. The survey asked carers about their own and their relatives with dementia's, social support service usage and financing; as well as how they were made aware of services and whether they required more support. Qualitative transcripts were analysed by two researchers in each country using thematic analysis.
resultsA total of 103 carer questionnaires were received by post and 13 interviews were conducted with people with dementia and family carers between January 2020 and April 2020. Many services were accessed via self-funding. Thematic analysis generated five core themes: Health literacy; Having faith and lack of faith; Service suitability; Structural issues surrounding service provision; and Financing care. One major difference between both country's systems of care were the case manager and network support which people with dementia and carers benefitted from in the Netherlands, which was rarely the case in the UK.
conclusionsPeople with dementia and informal carers need to be supported better in accessing formal dementia care services in both the UK and the Netherlands, whilst some learning can be taken to improve access.
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Registered trials
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