Evidence map›Paper›PMID 34825742›Full record

ReviewInternational journal of geriatric psychiatry2022

How do community based dementia friendly initiatives work for people with dementia and their caregivers, and why? A rapid realist review.

Marjolein Thijssen, Ramon Daniels, Monique Lexis, Rianne Jansens, José Peeters, Neil Chadborn, Maria W G Nijhuis-van der Sanden, Wietske Kuijer-Siebelink, Maud Graff

Abstract readReview
In one paragraph

Review in International journal of geriatric psychiatry, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed.

  1. Review
  2. Article
  3. Co-Producing and Evaluating a Culturally Inclusive Dementia Education Initiative: A Multimethod Study Protocol.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  4. Article
  5. Article
  6. Review
  7. Article
  8. Review
  9. Article
  10. Article
  11. Article
  12. Review
  13. Collaboration for Developing and Sustaining Community Dementia-Friendly Initiatives: A Realist Evaluation.International journal of environmental research and public health · 2023
    Article
  14. Article
  15. Review
  16. Review
  17. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Marjolein ThijssenRadboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ Healthcare), Radboud University Mmedical Center, Nijmegen, The Netherlands.ORCID 0000-0001-6541-523X
Ramon DanielsAcademy of Occupational Therapy, Research Centre Assistive Technology in Care, Zuyd University of Applied Sciences, Heerlen, The Netherlands.
Monique LexisAcademy of Occupational Therapy, Research Centre Assistive Technology in Care, Zuyd University of Applied Sciences, Heerlen, The Netherlands.
Rianne JansensAcademy of Occupational Therapy, Research Centre Assistive Technology in Care, Zuyd University of Applied Sciences, Heerlen, The Netherlands.
José PeetersRadboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ Healthcare), Radboud University Mmedical Center, Nijmegen, The Netherlands.
Neil ChadbornSchool of Medicine, University of Nottingham, Nottingham, UK.ORCID 0000-0003-1368-7983
Maria W G Nijhuis-van der SandenRadboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ Healthcare), Radboud University Mmedical Center, Nijmegen, The Netherlands.
Wietske Kuijer-SiebelinkResearch Department of Public Affairs, HAN University of Applied Sciences, Nijmegen, The Netherlands.
Maud GraffRadboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ Healthcare), Radboud University Mmedical Center, Nijmegen, The Netherlands.

Funding

Netherlands Organization for Health Research and Development
6 · The paper itself

Abstract

objectivesTo describe and explain the outcomes of community dementia friendly initiatives (DFIs) for people with dementia and their caregivers to inform the development and tailoring of DFIs.

methodsLiterature searches on DFIs were performed through two systematic online database searches of PubMed, Embase, ASSIA, CINAHL and Google scholar. Papers were only included if they evaluated outcomes using empirical data from people with dementia or caregivers. Data collection and analysis were guided by the categorization in the DEM-FACT taxonomy and RAMESES guidelines for realist reviews.

resultsOf 7154 records identified, 22 papers were included with qualitative, mixed method and quantitative study designs. The synthesis led to a description of programme theories addressing caring, stimulating and activating communities. Outcomes for people with dementia and caregivers included having contact with others, enjoyment and decrease of stress and, lastly, support. This synthesis also indicated how people with dementia participated in a specific role in DFIs, such as patient, team member or active citizen.

conclusionsDFIs generate different outcomes for people with dementia and caregivers, depending on the kind of initiative and the specific role for people with dementia. These findings could be a catalyst for initiation and further development of DFIs in a dementia friendly community (DFC). This draws attention to the multiple aspects of DFCs and supports reflection on their essential principles.

Indexed as

CaregiversDementiaHumansResearch Designcaregiversdementiadementia friendly communitiesdementia friendly initiativesoutcomesrealist reviewsocial participation

Identifiers

PMID34825742
PMCPMC9299867

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.