Evidence map›Paper›PMID 34824105›Full record

ArticleBMJ open2021

Parents' preferences for follow-up care in a type 1 diabetes paediatric population: a survey-based study in Quebec, Canada.

Maude Laberge, Monia Rekik, Kodjo Mawuegnigan Djiffa

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
0.1field-weighted citation impact, top 46% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 2 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 2 institutions in 1 country.

Maude LabergeOperations and Decision Systems, Universite Laval Faculte des sciences de l'administration, Quebec, Quebec, Canada maude.laberge@fsa.ulaval.ca.ORCID 0000-0003-1274-136X
Monia RekikOperations and Decision Systems, Universite Laval Faculte des sciences de l'administration, Quebec, Quebec, Canada.
Kodjo Mawuegnigan DjiffaOperations and Decision Systems, Universite Laval Faculte des sciences de l'administration, Quebec, Quebec, Canada.
Université Laval · CACentre hospitalier de l'Université Laval · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesExamine variations in parent's preferences for their child's type 1 diabetes (T1D) follow-up care and the determinants of the preferred intensity of care. Clinical guidelines recommend multidisciplinary management of T1D, with follow-up visits with an endocrinologist at least every 3 months in the paediatric population. However, there could be heterogeneity in parents' needs, and preferences in terms of care management may deviate from clinical guidelines.

settingNot applicable.

participantsParents who have a child living with T1D and who reside in Quebec, Canada.

interventionIn collaboration with a patient-partner (a parent of a child with T1D), we developed a survey to collect data from parents of children living with T1D. Our primary outcome of interest was the preferred time in months between two appointments. We ran a probit model to analyse longer time (over 3 months between appointments), compared with the standard of care (3 months or less).

resultsResults suggest that about one-third (33%) of parents want to deviate from the guideline. Parents who want to increase the time between appointments are more experienced in the management of the disease and have higher costs than those who wish to follow the 3-month guideline. The number of years since the diagnosis is positively associated with a preference for a longer time between appointments, while the perceived useful of information provided during the consultation, and a parent having made a change in their professional life were negatively associated with a desire to space out appointments. The child's gender is not a significant factor in parents' preferences.

conclusionsAdapting visit protocols could make the health system more efficient to respond to T1D patients and their parent's needs.

Indexed as

Diabetes Mellitus, Type 1AftercareChildHumansParentsQuebecSurveys and Questionnairesgeneral diabetespaediatric endocrinologyprotocols & guidelines

Identifiers

PMID34824105
PMCPMC8627392
OpenAlexW3215581737

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.