Observational studyQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2022
Perceptions of parents of the impact of autism spectrum disorder on their quality of life and correlates: comparison between mothers and fathers.
Observational study in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02625116 (ELENA Cohort), which is not on this map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
ELENA Cohort: A Long-term Longitudinal Study in a Pediatric Sample With Autism Spectrum Disorders
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 40 citations in OpenAlex.
- Systematic review of measures and interventions for caregiver adjustment to child autism diagnosis.Autism : the international journal of research and practice · 2026Pooled it
- Multidimensional Correlates of Mental Health and Quality of Life in Chinese Caregivers of Preschool-Aged Autistic Children.Journal of autism and developmental disorders · 2026Article
- Effects of Community-Based Acceptance and Commitment Therapy on Quality of Life and Mental Health Outcomes for Mothers of Children With Autism Spectrum Disorder: A Pilot RCT in China.Journal of autism and developmental disorders · 2026Article
- Stress coping strategies in parents of children with central coordination disorders undergoing Vojta therapy: a two-month prospective observational study.Frontiers in psychology · 2026Article
- The asymmetric relationship of parental psychological flexibility and parenting involvement in autism: anxiety as a mediator.Frontiers in public health · 2026Article
- Contributions of the ELENA Cohort to Study Autism Spectrum Disorder in Children and Adolescents from a Biopsychosocial Framework.Journal of autism and developmental disorders · 2026Article
- Capability well-being in mothers and fathers of autistic children: a cross-sectional study from China.BMC psychology · 2025Article
- A journey from suffering to appreciation: mother living with autistic child- a hermeneutic phenomenological study.BMC women's health · 2025Article
- Link between children's oppositional behaviors and parental quality of life post-ASD diagnosis: Mediating role of parental stress and coping strategies.JCPP advances · 2025Article
- Impact of a Genetic Diagnosis for a Child's Autism on Parental Perceptions.Journal of autism and developmental disorders · 2025Article
- The Quality of Life of Iranian Mothers and Fathers of Children with Autism.Children (Basel, Switzerland) · 2025Article
- Quality of Life in Hungarian Parents of Autistic Individuals.Journal of autism and developmental disorders · 2025Article
- "I felt shamed and blamed": an exploration of the parental lived experience of school distress.Frontiers in psychiatry · 2025Article
- Quality of life among parents of autistic children: questionnaire validation study and multivariate analysis of associated factors.Frontiers in psychiatry · 2025Article
- Association between adherence to behavioral intervention and capability well-being among parents of autistic children: a cross-sectional study from China.BMC psychiatry · 2024Article
- A Prospective Study of the Family Quality of Life, Illness Perceptions, and Coping in Mothers of Children Newly Diagnosed with Autism Spectrum Disorder and Communication Difficulties.European journal of investigation in health, psychology and education · 2024Article
- Experiences of caregivers of children with autism during the COVID-19 pandemic: A scoping review.The South African journal of communication disorders = Die Suid-Afrikaanse tydskrif vir Kommunikasieafwykings · 2024Article
- The Relationship between Anxiety Symptoms and Perceived Quality of Life among Caregivers of Children with Autism Spectrum Disorder in the Amazon.International journal of environmental research and public health · 2024Article
- Effects of stress and self-efficacy on quality of life of mothers with autistic children: Covariance-Based Structural Equation Modeling (CB-SEM) approach.Belitung nursing journal · 2024Article
- Beneficial Effects of Setmelanotide in a 5-Year-Old Boy With POMC Deficiency and on His Caregivers.JCEM case reports · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 4 institutions in 3 countries.
Funding
Abstract
purposeTo compare mothers and fathers perceptions of the impact of autism spectrum disorder on their Quality of Life (QoL), we used the Parental-Developmental Disorders-Quality of Life scale (Par-DD-QoL).
methodThe perception of QoL of mothers and fathers was compared for 130 pairs of parents of children with ASD and the associated variables were investigated.
resultsMothers perceived a significantly greater impact of ASD on their QoL than fathers. Parents perceived a higher impact of ASD on global QoL when their child's adaptive skills were low and when the level of aberrant behaviors was high. More precisely, the perception of QoL by the mothers was negatively associated with their child's internalized disorders, whereas the perception of QoL by the fathers was negatively associated with their child's externalized disorders. Neither the mothers' nor the fathers' perception of the impact on QoL was associated with their children's age or the severity of their autistic symptoms. Some parental factors, such as being members of a family association, having benefited from training in ASD and having experienced a disruption in professional activity were associated with a greater impact on their QoL.
conclusionOur finding that the perceived impact of ASD on QoL differed between mothers and fathers argues for individualized psychosocial support. Moreover, the strong correlation between the child's clinical characteristics and the perception by parents of a higher impact of ASD on QoL should be seen as red flag concerning the needs of the parents in terms of social and educational support. TRIAL REGISTRATION NUMBER: NCT02625116 (October 2015).
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.