Evidence map›Paper›PMID 34803797›Full record

ArticleFrontiers in psychology2021

Patient and Public Involvement in Youth Mental Health Research: Protocol for a Systematic Review of Practices and Impact.

Célia M D Sales, Filipa Martins, Marisa M Alves, Sara Carletto, Sonia Conejo-Cerón, Luis Costa da Silva, Anja Čuš, Chloe Edridge, Nuno Ferreira, Camellia Hancheva and 12 more

Abstract read
In one paragraph

Article in Frontiers in psychology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Participatory research with carers: A systematic review and narrative synthesis.Health expectations : an international journal of public participation in health care and health policy · 2024
    Pooled it
  3. Review
  4. Article
  5. Article
  6. A Youth-Led Evaluation of Adolescent Involvement in a Project on Development of Guidelines for Adolescent Involvement in Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  7. 'Co-Production Is Caring': Young People's Reflections on Responsible and Dialogic Co-Production in Youth Mental Health.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  8. Article
  9. Article
  10. Article
  11. 'Including us, talking to us and creating a safe environment'-Youth patient and public involvement and the Walking In ScHools (WISH) Study: Lessons learned.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

22 authors.

Célia M D SalesFaculty of Psychology and Education Science, University of Porto, Porto, Portugal.
Filipa MartinsFaculty of Psychology and Education Science, University of Porto, Porto, Portugal.
Marisa M AlvesFaculty of Psychology and Education Science, University of Porto, Porto, Portugal.
Sara CarlettoDepartment of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy.
Sonia Conejo-CerónBiomedical Research Institute of Malaga (IBIMA), Málaga, Spain.
Luis Costa da SilvaEvidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom.
Anja ČušDepartment of Child and Adolescent Psychiatry, Medical University of Vienna, Vienna, Austria.
Chloe EdridgeEvidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom.
Nuno FerreiraDepartment of Social Sciences, University of Nicosia, Nicosia, Cyprus.
Camellia HanchevaSofia University St. Kliment Ohridski, Sofia, Bulgaria.
Esperanca M A LimaFaculty of Psychology and Education Science, University of Porto, Porto, Portugal.
Shaun LiverpoolEvidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom.
Nick MidgleyEvidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom.
Bettina MoltrechtEvidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom.
Patricia Moreno-PeralBiomedical Research Institute of Malaga (IBIMA), Málaga, Spain.
Nicholas MorganChild Outcomes Research Consortium, Anna Freud National Centre for Children and Families, London, United Kingdom.
Rose MortimerEvidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom.
Catarina Pinheiro MotaEvidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom.
Giada PietrabissaDepartment of Psychology, Catholic University of Milan, Milan, Italy.
Sonia SousaSchool of Digital Technologies, Tallinn University, Tallinn, Estonia.
Randi UlbergDivision of Mental Health and Addiction, Institute of Clinical Medicine, University of Oslo, Oslo, Norway.
Julian Edbrooke-ChildsEvidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Various health settings have advocated for involving patients and members of the public (PPI) in research as a means to increase quality and relevance of the produced knowledge. However, youth PPI has been an understudied area. This protocol paper describes a new project that aims to summarize what is known about PPI with young people in mental health research. In line with the Preferred Reporting Items for Systematic reviews and Meta-Analyses Statement guidelines we will identify and appraise suitable articles and extract and synthesize relevant information including at least two reviewers at each stage of the process. Results will be presented in two systematic reviews that will describe (a) how youth PPI has been conducted (Review1) and (b) what impact youth PPI had on the subsequent research and on stakeholders (Review2). To our knowledge, this is the first set of reviews that uses a critical appraisal tool, which is co-developed with children and young people. Findings from this project will provide valuable insights and set out the key steps to adopting adequate PPI methods when involving children and young people in mental health research.

Indexed as

adolescentsinvolvement in researchmental healthpatient and public involvementyoung people

Identifiers

PMID34803797
PMCPMC8603822

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.