Evidence map›Paper›PMID 34802470›Full record

ArticleBMC psychology2021

Internalization of stigma among parents of children with autism spectrum disorder in Nigeria: a mixed method study.

Aminat Y Oduyemi, Ifeoma P Okafor, Ugochukwu T Eze, Babatunde A Akodu, Alero A Roberts

Open access · goldAbstract read
In one paragraph

Article in BMC psychology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.

0numbers the graph read from it
0cells of the map it votes in
23citing papers in PubMed
2.4field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

23 citing papers in PubMed, 38 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

Aminat Y OduyemiDepartment of Community Health and Primary Care, College of Medicine, University of Lagos, Lagos, Nigeria.
Ifeoma P OkaforDepartment of Community Health and Primary Care, College of Medicine, University of Lagos, Lagos, Nigeria. ipokafor@cmul.edu.ng.
Ugochukwu T EzeDepartment of Community Health, Lagos University Teaching Hospital, Lagos, Nigeria.
Babatunde A AkoduDepartment of Community Health and Primary Care, College of Medicine, University of Lagos, Lagos, Nigeria.
Alero A RobertsDepartment of Community Health and Primary Care, College of Medicine, University of Lagos, Lagos, Nigeria.
University of Lagos · NGLagos University Teaching Hospital · NG

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAutism Spectrum disorder (ASD) has uniquely stigmatizing aspects because children with ASD have no physical markers of their condition. Parents are usually blamed and judgment from others is often internalized (felt stigma).

aimThis study was conducted to determine knowledge about ASD, negative experiences (enacted stigma), internalization of stigma (felt or self stigma) and its correlates among parents of children with ASD in Lagos, Nigeria.

methodsThis was a cross-sectional study of 230 parents in Lagos, Nigeria employing mixed-method data collection methods. Quantitative data were collected using a structured interviewer-administered questionnaire and analyzed with Epi- Info™ version 7.0 statistical package. Data were summarized with proportions, mean and standard deviation. Chi square and Spearman's correlation tests were done, and the level of significance was pre-determined at 5% (p < 0.05). In-depth interviews were also conducted among six parents to further explore the topic. The interviews were analyzed narratively.

resultsThe proportion of mothers and fathers were 175 (76.1%) and 55 (23.9%) respectively. The mean age of respondents was 42 ± 8.5 years. Overall knowledge of ASD was very poor as only 3(1.3%) had good knowledge. Overall, 122(53%) usually had negative experience of parenting a child with ASD (enacted stigma), mothers (17.1%) more than fathers (9.1%). Majority 192(83.5%) internalized stigma. There was a low-moderate correlation between 'enacted' stigma and 'internalized' stigma (ρ- 0.400, p < 0.001). From in-depth interviews, many parents revealed that their child's condition had negative effects on the family. Many also recounted negative experience of stigma.

conclusionOverall, parents of children with ASD had poor knowledge of the condition. Majority internalized stigma and this increases with negative treatment from others. Parents should be properly educated about ASD. Community-based education to increase awareness about ASD in addition to encouraging people to show empathy and reduce stigmatizing behaviour towards parents of children with ASD are recommended.

Indexed as

Autism Spectrum DisorderAdultChildCross-Sectional StudiesFemaleHumansMiddle AgedNigeriaParentsSocial StigmaAutism Spectrum Disorder (ASD)Childhood disabilitySocial changeSocial inclusionStigma

Identifiers

PMID34802470
PMCPMC8607563
OpenAlexW3217539085

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.