Evidence map›Paper›PMID 34801065›Full record

ArticleOrphanet journal of rare diseases2021

Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies.

P Pérez-Núñez, E Lázaro, I Amayra, J F López-Paz, P Caballero, O Martínez, M Pérez, S Berrocoso, M Al-Rashaida, M García and 2 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Orphanet journal of rare diseases, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.3field-weighted citation impact, top 35% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 4 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 1 institution in 1 country.

P Pérez-NúñezDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain. paula.perezn@deusto.es.ORCID 0000-0003-2942-1565
E LázaroDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain.
I AmayraDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain.
J F López-PazDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain.
P CaballeroDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain.
O MartínezDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain.
M PérezDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain.
S BerrocosoDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain.
M Al-RashaidaDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain.
M GarcíaDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain.
A A RodríguezDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain.
P M LunaDepartment of Psychology, Faculty of Psychology and Education, University of Deusto, Bilbao, Spain.
Universidad de Deusto · ES

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionMucopolysaccharidosis type III (MPS III) or Sanfilippo syndrome is a neurodegenerative disease caused by the accumulation of mucopolysaccharides in the body. As the symptoms are wide ranging, it is a challenge to provide a diagnosis and psychological treatment for affected children.

methodThe main objective of this study was to describe a form of music therapy treatment applied to three children diagnosed with MPS III. The psychological variables were evaluated by an ad hoc observation recording template, and the physiological variables were measured with a digital meter before and after each session. The perception of the parents was also considered through a semi-structured interview.

resultsAn improvement in the psychological variables was shown in all cases. Changes in the physiological variables were also noted, although they varied according to each child. The parents report some benefit of music therapy and they share difficulty in assessing the extent of benefits of the music therapy. DISCUSSION: Findings indicate that music therapy can be a useful form of treatment with multiple benefits for children with conditions such as MPS III or similar conditions. However, further research is needed in this area and in the development of specific ways of evaluating music therapy.

Indexed as

Mucopolysaccharidosis IIIMusic TherapyNeurodegenerative DiseasesChildGlycosaminoglycansHumansParentsGlycosaminoglycansMusic therapyPsychological and physiological variablesSanfilippo

Identifiers

PMID34801065
PMCPMC8605530
OpenAlexW3215328767

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.