Evidence map›Paper›PMID 34798949›Full record

ReviewRheumatic diseases clinics of North America2022

The Promises and Perils of Social Media for Pediatric Rheumatology.

Jonathan S Hausmann, Elissa R Weitzman

Open access · greenAbstract readReview
In one paragraph

Review in Rheumatic diseases clinics of North America, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
0.5field-weighted citation impact, top 29% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 8 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors at 1 institution in 1 country.

Jonathan S HausmannProgram in Rheumatology, Division of Immunology, Boston Children's Hospital, 300 Longwood Avenue, Fegan 6, Boston, MA 02115, USA; Division of Rheumatology and Clinical Immunology, Beth Israel Deaconess Medical Center, Boston, MA, USA. Electronic address: jonathan.hausmann@childrens.harvard.edu.
Elissa R WeitzmanDivision of Adolescent/Young Adult Medicine, Boston Children's Hospital, Boston, MA, USA; Department of Pediatrics, Harvard Medical School, Boston, MA, USA; Computational Health Informatics Program, Boston Children's Hospital, Boston, MA, USA.
Boston Children's Hospital · US

Funding

Enhancing Meaningfulness and Usefulness of Pediatric and Caregiver PROMIS Measures Across Illness GroupsU19AR069522 · NIAMS · UNIV OF NORTH CAROLINA CHAPEL HILL · PI BENNETT, ANTONIA · 2015 to 2015
$2.9M
Leveraging social media to engage adolescent participants in patient-centered cohort research for the clinical care of rheumatic diseasesR21AR070944 · NIAMS · BOSTON CHILDREN'S HOSPITAL · PI WEITZMAN, ELISSA R · 2017 to 2018
$428k
NIAMS NIH HHS R21 AR070944NIAMS NIH HHS U19 AR069522
6 · The paper itself

Abstract

The advent of social media has revolutionized and empowered communities of people living with rare diseases. Social media has enabled families of children with similar pediatric rheumatic diseases (PRDs) to meet regardless of geographic distance, allowing them to support each other and join together to advocate on behalf of their children. Researchers have also leveraged social media to learn about the health of patients and their communities. This article reviews the promises and perils of social media related to health, focusing on its potential use to support research and care of children with PRD.

Indexed as

Rheumatic DiseasesRheumatologySocial MediaChildHumansDigital technologyPatient support organizationsPediatric rheumatologyResearchSelf-help groupsSocial media

Identifiers

PMID34798949
PMCPMC8630809
OpenAlexW3212774205

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.