Evidence map›Paper›PMID 34798870›Full record

ArticleBMC health services research2021

Community-based support for children who are next-of-kin for a parent experiencing illness or disability - a scoping review.

Anne Kjersti Myhrene Steffenak, Agneta Anderzén-Carlsson, Elin Opheim, Tuva Sandsdalen

Abstract readScoping Review
In one paragraph

Article in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Anne Kjersti Myhrene SteffenakInland Norway University of Applied Sciences, Faculty of Health and Social Sciences, Elverum, Norway. anne.myhrene@inn.no.
Agneta Anderzén-CarlssonUniversity Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
Elin OpheimInland Norway University of Applied Sciences, Faculty of Health and Social Sciences, Elverum, Norway.
Tuva SandsdalenInland Norway University of Applied Sciences, Faculty of Health and Social Sciences, Elverum, Norway.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionChildren who are next-of-kin, for a parent who experience illness or disability, need support. In Norway, guidelines, routines and structured approaches in the community health services are lacking regarding involving children in the care of a parent and for services when supporting children as next-of-kin. Additionally, no existing international review has focused on support from community health and social services for children who are next-of-kin to a parent regardless of the specific illness or disability.

aimsThis scoping review examined the current knowledge regarding the types of community health and social services support to children 0 to 17 years old living with a parent experiencing illness or disability. The review also identified children's support preferences and needs.

methodsThe scoping review involved five stages; identifying research question; identifying relevant articles; selecting articles; charting the data and finally, collating, summarizing and reporting the results.

resultsArticles which included community health and social services interventions and children's preferences or needs for support were included. The foci of interventions included preventive education, peer support, psychosocial support, and interventions focusing on family communication and recovery planning. Articles focusing on children's preferences or need for support described their wish to be recognized as a next-of-kin, having someone to talk to and professional and peer support.

conclusionThe review highlighted the importance of children receiving support according to their preferences. It is important to elicit children's voices, to ensure community health and social services are developed for and tailored to this population.

Indexed as

Parent-Child RelationsParentsAdolescentChildChild, PreschoolHumansInfantInfant, NewbornNorwayChild, Children in community healthInterventionNext-of-kinPatient preferenceSocial servicesSupport

Identifiers

PMID34798870
PMCPMC8603592

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.