ArticleSouth African family practice : official journal of the South African Academy of Family Practice/Primary Care2021
Improving health-related quality of life instrument translation into South African languages.
Article in South African family practice : official journal of the South African Academy of Family Practice/Primary Care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.
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Who cites it
6 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Measuring health-related quality of life in Africa: a systematic review of validated disease-specific and generic measurement tools.Frontiers in psychology · 2025Pooled it
- Article
- Aging with burden: multimorbidity, depression and quality of life in older adults residing in long-term care facilities in South Africa.BMC geriatrics · 2026Article
- Translation of the Children's Visual Function Quality of Life instrument from English to Sepedi.Health SA = SA Gesondheid · 2025Article
- Single cell and TCR analysis of immune cells from AAV gene therapy-dosed Duchenne muscular dystrophy patients.Molecular therapy. Methods & clinical development · 2024Article
- Adapting and usability testing of the Kansas city cardiomyopathy questionnaire (KCCQ) in a heart failure clinic in Tanzania: the Swahili KCCQ.BMC cardiovascular disorders · 2023Article
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Abstract
backgroundMost health-related quality of life (HRQoL) instruments have been created in English, which can influence their reliability and validity in non-English speaking populations. This study assessed the translation methodology of HRQoL instruments that have been used and translated into South African languages and which could be applied in cost-utility analyses (CUAs).
methodsA 2019 systematic review was updated with searches conducted in Medline, the Web of ScienceTM (WoSTM) Core Collection and the South African SciELO collection via the WoSTM Platform. Additional searches in Sabinet's African Journals database and on instrument developers' webpages were performed. Only HRQoL instruments suitable for CUAs were included. Articles reporting at least one element of the translation methods were included. Established good practice principles were used to evaluate the translation methodology.
resultsWithin the 39 publications identified, a dozen translated instruments have been used in South Africa. All instruments used were translated from English and none had originally been created in South Africa. Instrument developers' translations were used more than study investigators' translations. Almost all instrument developer versions met the full translation criteria. No investigator translated instrument met the full translation criteria primarily because recommendations on forward and back translations were not followed. However, this analysis was hampered by a lack of methodological reporting details. The most used instruments, which also had the most translated versions available, were the EQ-5D-3L, SF-36 version 2 and EORTC QLQ-C30.
conclusionInstrument developers' translations more often met recommended translation methodology compared with investigators' versions. The EQ-5D-3L may be best suited for South African economic evaluations and for use in clinical practice, but further work may be needed.
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