Evidence map›Paper›PMID 34793292›Full record

ArticleInternational journal of qualitative studies on health and well-being2021

A "pretty normal" life: a qualitative study exploring young people's experience of life with bronchiectasis.

Julie Blamires, Annette Dickinson, El Shadan Tautolo, Catherine A Byrnes

Abstract read
In one paragraph

Article in International journal of qualitative studies on health and well-being, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

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0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Julie BlamiresSchool of Clinical Sciences Auckland University of Technology, Northcote, Auckland.ORCID 0000-0002-8515-1769
Annette DickinsonSchool of Clinical Sciences Auckland University of Technology, Northcote, Auckland.
El Shadan TautoloSchool of Public Health & Interdisciplinary Studies Director-AUT Pacific Health Research Centre, Auckland University of Technology, NZ.
Catherine A ByrnesDepartment of Paediatrics; Child and Youth Health, Faculty of Health & Medical Sciences, University of Auckland, Auckland, NZ.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeBronchiectasis is a chronic respiratory disease that impacts significantly on quality of life for those who have it. There is a paucity of literature exploring the perspectives of children and young people. The aim of this study was to examine the day-to-day life experience of a group of young people with bronchiectasis.

methodA qualitative study using semi-structured interviews explored fifteen young people's perspectives of life with bronchiectasis. Key themes were identified using an inductive iterative approach through constant comparative analysis guided by Thorne's interpretive description.

resultsLife with bronchiectasis was conceptualized by participants as "Pretty Normal". This consisted of two co-existing life views which represented how young people balanced the ups and downs of adolescence while learning to accommodate the demands of living with bronchiectasis. Three key thematic elements "sore and tired", 'life interrupted and "looking after self", influenced and challenged these two views of life.

conclusionsYoung people with bronchiectasis portray life as being the same as their peers. Despite this, they recognized that the symptoms, interruptions, and self-management responsibilities led them to find ways of coping and integrating their experience into a new and modified view of normal.

Indexed as

BronchiectasisSelf-ManagementAdaptation, PsychologicalAdolescentChildHumansQualitative ResearchQuality of LifeBronchiectasisinterpretive descriptionnormal lifeyouth

Identifiers

PMID34793292
PMCPMC8604450

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.