Evidence map›Paper›PMID 34791829›Full record

ArticleACR open rheumatology2022

Acceptability of an Adolescent Self-Management Program for Juvenile Idiopathic Arthritis.

Kelsey Chomistek, Cheryl Barnabe, Syeda Farwa Naqvi, Kathryn A Birnie, Nicole Johnson, Nadia Luca, Paivi Miettunen, Maria J Santana, Jennifer Stinson, Heinrike Schmeling

Abstract read
In one paragraph

Article in ACR open rheumatology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Kelsey ChomistekCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Cheryl BarnabeCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.ORCID https://orcid.org/0000-0003-3761-237X
Syeda Farwa NaqviCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Kathryn A BirnieCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Nicole JohnsonCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Nadia LucaCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Paivi MiettunenCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Maria J SantanaCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Jennifer StinsonLawrence S. Bloomberg Faculty of Nursing, University of Toronto and Research Institute, The Hospital for Sick Children, Toronto, Ontario, Canada.
Heinrike SchmelingCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.ORCID https://orcid.org/0000-0001-8142-8946

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveThe study objective was to test the acceptability of a self-management program (SMP) for adolescents with juvenile idiopathic arthritis (JIA) focused on disease information, self-management, and social support needs.

methodsThis study was conducted using inductive qualitative methods to explore the acceptability of an in-person/videoconference SMP. Two groups of four adolescents with JIA (mean age = 13.5, SD = 0.8) and two groups of pediatric rheumatology health care professionals (n = 4, n = 5) participated in four feedback sessions each. The SMP was presented to study participants, and feedback was provided on the content, format, and structure of the program. Thematic analysis was used to analyze the data.

resultsAdolescents felt that the content was appropriate and would be effective in supporting self-management of their arthritis. Participants advised that the trustworthiness of the information would be increased if a rheumatology health care provider facilitated the session. Potential barriers to participation included distance and availability (weekdays and times), but the option for videoconference-based participation was an appropriate solution to both of these issues. Minor changes were made to content and format, and required changes were made to address participant recommendations for improvement.

conclusionThis study confirmed the acceptability of an in-person/videoconference SMP for patients with JIA. Modifications were made to the SMP based on the focus group feedback, and future directions include a pilot randomized controlled trial to assess feasibility and preliminary effectiveness of the program.

Identifiers

PMID34791829
PMCPMC8843737

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.