Evidence map›Paper›PMID 34784071›Full record

ArticleHaemophilia : the official journal of the World Federation of Hemophilia2022

Sexual issues in people with haemophilia: Awareness and strategies for overcoming communication barriers.

Greig Blamey, Becky Van Tassel, Elizabeth Sagermann, Ann Marie Stain, Linda Waterhouse, Alfonso Iorio

Open access · hybridAbstract read
In one paragraph

Article in Haemophilia : the official journal of the World Federation of Hemophilia, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
0.7field-weighted citation impact, top 27% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 8 citations in OpenAlex.

  1. European Principles of Nursing Care for Persons With Inherited Bleeding Disorders.Haemophilia : the official journal of the World Federation of Hemophilia · 2025
    Article
  2. Article
  3. Sexuality and bleeding in von Willebrand disease.Research and practice in thrombosis and haemostasis · 2025
    Article
  4. Sexual activity and the adolescent with haemophilia.Acta bio-medica : Atenei Parmensis · 2023
    Review
  5. Sexual issues in people with haemophilia: Awareness and strategies for overcoming communication barriers.Haemophilia : the official journal of the World Federation of Hemophilia · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 6 institutions in 2 countries.

Greig BlameyHealth Sciences Centre, Winnipeg, Manitoba, Canada.
Becky Van TasselCentre for Sexuality, Calgary, Alberta, Canada.
Elizabeth SagermannERS Consulting, Nobleton, Ontario, Canada.
Ann Marie StainDepartment of Nursing, Hospital for Sick Children, Toronto, Ontario, Canada.
Linda WaterhouseMcMaster Children's Hospital, Hamilton Health Sciences, Hamilton, Ontario, Canada.
Alfonso IorioDepartment of Health Research, Methods, Evidence, and Impact, Department of Medicine, McMaster University, Hamilton, Ontario, Canada.ORCID https://orcid.org/0000-0002-3331-8766
Health Sciences Centre · CAHospital for Sick Children · CAImpact · CAMcMaster Children's Hospital · CARED Consulting (Norway) · NOVirtual Materials Group (Canada) · CA

Funding

Novo Nordisk
6 · The paper itself

Abstract

introductionThe Haemophilia Experiences, Results and Opportunities (HERO) Study identified sexual health as an important psychosocial issue affecting people with haemophilia (PWH) worldwide. However, sexual health is inadequately addressed at haemophilia treatment centres (HTCs), because PWH and healthcare professionals (HCPs) experience barriers to broaching the subject. There is a clear need for HCP training to support communication in this area and improve comprehensive care.

aimThe Sexual Health: Strategies for Effective Communication pilot programme was trialled in Canada to assess HCP readiness and ability to discuss sexual health issues with PWH and test communication tools to facilitate these conversations.

methodsThe pilot programme consisted of two 3-h sessions attended by seven HCPs from Calgary's Alberta Children's and Foothills Hospitals. The sessions included lectures and case scenarios and explained the check-in-affirm-clarify-answer and head-heart-body tools designed by the Centre for Sexuality to aid communication. The pilot was evaluated through discussions and an online questionnaire.

resultsThe pilot was well received by all HCP participants. Questionnaire data showed improvements in participants' knowledge, skills and comfort level in conducting sexual health discussions. Greatest improvements were noted in knowledge (100% 'good' or 'excellent' after the pilot, compared with 29% beforehand). Importantly, 86% felt that the material presented would be applicable in clinical practice.

conclusionThe Canadian pilot demonstrated the effectiveness of the proposed educational programme. The underlying principles could be adapted to similar programmes for other HTCs to facilitate sexual health discussions.

Indexed as

Hemophilia ACanadaChildCommunicationCommunication BarriersHealth PersonnelHumansadult learningcommunication techniques around sexual health in haemophiliahaemophilia and sexual healthprofessional practicesexual health in haemophiliasexuality and disability

Identifiers

PMID34784071
PMCPMC9299037
OpenAlexW3211880011

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.