Evidence map›Paper›PMID 34781938›Full record

ArticleBMC health services research2021

Cost analysis of informal care: estimates from a national cross-sectional survey in Sweden.

Björn Ekman, Kevin McKee, Joana Vicente, Lennart Magnusson, Elizabeth Hanson

Abstract read
In one paragraph

Article in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers.

0numbers the graph read from it
0cells of the map it votes in
29citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

29 citing papers in PubMed.

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  3. Economic value of non-professional care in Spain. An analysis of the last decade.The European journal of health economics : HEPAC : health economics in prevention and care · 2026
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  14. Time value of informal care of people with alzheimer's disease in Spain: a population-based analysis.The European journal of health economics : HEPAC : health economics in prevention and care · 2025
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  18. The Economic Costs of Informal Care: Estimates from a National Cross-Sectional Survey in The Netherlands.The European journal of health economics : HEPAC : health economics in prevention and care · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Björn EkmanDepartment of Clinical Sciences, Malmö (IKVM), Lund University, Malmö, Sweden. bjorn.ekman@med.lu.se.ORCID https://orcid.org/0000-0001-7630-7904
Kevin McKeeSchool of Health and Welfare, Dalarna University, Falun, Sweden.ORCID https://orcid.org/0000-0002-8795-7555
Joana VicenteDepartment of Health and Caring Sciences, Linnaeus University, Sweden and Swedish Family Care Competence Centre, Kalmar, Sweden.ORCID https://orcid.org/0000-0003-1037-4682
Lennart MagnussonDepartment of Health and Caring Sciences, Linnaeus University, Sweden and Swedish Family Care Competence Centre, Kalmar, Sweden.ORCID https://orcid.org/0000-0003-2028-6213
Elizabeth HansonDepartment of Health and Caring Sciences, Linnaeus University, Sweden and Swedish Family Care Competence Centre, Kalmar, Sweden.ORCID https://orcid.org/0000-0001-7609-4822

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundOver the past decades, informal care has increased in most OECD-countries. Informal care is costly to caregivers and to society in the form of lost income and direct costs of providing care. Existing evidence suggests that providing informal care affects caregivers' overall health. However, estimates of the social costs of informal care based on national data on individuals are currently scarce.

objectiveThis study contributes to the existing evidence on the costs of informal care by estimating the direct and indirect costs to caregivers using a purposive national household survey from Sweden.

methodsAdopting a bottom-up, prevalence approach, the direct and indirect costs are estimated using the survey data and the value of working time and leisure time from existing sources.

resultsThe results suggest that around 15% of the adult population of Sweden provide informal care and that such care costs around SEK 152 billion per year (around 3% of GDP; USD 16,3 billion; EUR 14,5 billion), or SEK 128000 per caregiver. Around 55% of costs are in the form of income loss to caregivers. The largest cost items are reduced work hours and direct costs of providing informal care. Replacing informal caregivers with professional care providers would be costly at around SEK 193,6 billion per year.

conclusionsFindings indicate that, even in a country with a relatively generous welfare system, significant resources are allocated toward providing informal care. The costing analysis suggests that effective support initiatives to ease the burden of informal caregivers may be cost-effective.

Indexed as

Cost of IllnessHealth Care CostsAdultCaregiversCross-Sectional StudiesHumansPatient CareSwedenCosts and cost analysisInformal careSurveySweden

Identifiers

PMID34781938
PMCPMC8591811

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.