Evidence map›Paper›PMID 34781009›Full record

ArticleJournal of biomedical informatics2021

CASIDE: A data model for interoperable cancer survivorship information based on FHIR.

Lorena González-Castro, Victoria M Cal-González, Guilherme Del Fiol, Martín López-Nores

Abstract read
In one paragraph

Article in Journal of biomedical informatics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Lorena González-CastroDepartment of eHealth, Galician Research & Development Center in Advanced Telecommunications (GRADIANT), Vigo, Spain; atlanTTic Research Center, Department of Telematics Engineering, University of Vigo, Vigo, Spain. Electronic address: lgonzalez@gradiant.org.
Victoria M Cal-GonzálezDepartment of eHealth, Galician Research & Development Center in Advanced Telecommunications (GRADIANT), Vigo, Spain.
Guilherme Del FiolDepartment of Biomedical Informatics, University of Utah School of Medicine, Salt Lake City, UT, USA.
Martín López-NoresatlanTTic Research Center, Department of Telematics Engineering, University of Vigo, Vigo, Spain.

Funding

Scalable Clinical Decision Support for Individualized Cancer Risk ManagementU24CA204800 · NCI · UNIVERSITY OF UTAH · PI DEL FIOL, GUILHERME, KAWAMOTO, KENSAKU · 2017 to 2021
$3.7M
Promoting Real World Implementation of an Evidence-Based Weight Management Intervention in Primary CareR18DK123372 · NIDDK · UNIVERSITY OF UTAH · PI CONROY, MARGARET B, KAWAMOTO, KENSAKU · 2020 to 2024
$3.1M
NCI NIH HHS U24 CA204800NIDDK NIH HHS R18 DK123372
6 · The paper itself

Abstract

Cancer survivorship has traditionally received little research attention although it is associated with a variety of long-term consequences and also many other comorbidities. There is an urgent need to increase research on this area, and the secondary use of healthcare data has the potential to provide valuable insights on survivors' health trajectories. However, cancer survivors' data is often stored in silos and collected inconsistently. In this study we present CASIDE, an interoperable data model for cancer survivorship information that aims to accelerate the secondary use of healthcare data and data sharing across institutions. It is designed to provide a holistic view of the cancer survivor, taking into account not just the clinical data but also the patient's own perspective, and is built upon the emerging Health Level Seven (HL7) Fast Healthcare Interoperability Resources (FHIR) standard. Advantages of adopting FHIR and challenges in information modelling using this standard are discussed. CASIDE is a generalizable approach that is already being used as a support tool for the development of downstream applications to support clinical decision making and can contribute to translational collaborative research on cancer survivorship.

Indexed as

Cancer SurvivorsNeoplasmsDelivery of Health CareElectronic Health RecordsHealth Level SevenHumansInformation DisseminationCancer survivorshipData standardsFHIRHealthcare data interoperabilitySecondary use

Identifiers

PMID34781009
PMCPMC9930408

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.