Evidence map›Paper›PMID 34780630›Full record

ArticleThe American journal of occupational therapy : official publication of the American Occupational Therapy Association2021

Experience of Sleep for Families of Young Adults With Autism Spectrum Disorder.

Nicole Halliwell, Mara Podvey, Julie D Smith, Katelyn Harris, Lorraine Sylvester, Beth W DeGrace

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in The American journal of occupational therapy : official publication of the American Occupational Therapy Association, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.4field-weighted citation impact, top 32% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 5 citations in OpenAlex.

  1. Article
  2. Social Participation Experiences of Families Raising a Young Child With Autism Spectrum Disorder: Implications for Mental Health and Well-Being.The American journal of occupational therapy : official publication of the American Occupational Therapy Association · 2023
    Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Nicole HalliwellNicole Halliwell, DSc, OTR/L, is Assistant Professor, Department of Occupational Therapy, Monmouth University, West Long Branch, NJ, and Occupational Therapist, Kid Clan Therapy Center, Clifton, NJ. At the time of this study, Halliwell was Doctoral Student, Rehabilitation Sciences Program, College of Allied Health, University of Oklahoma Health Sciences Center, Oklahoma City, and Occupational Therapist, The Phoenix Center, Nutley, NJ; n.halliwell.dsc.otr@gmail.com.
Mara PodveyMara Podvey, PhD, OTR, PMH-C, FAOTA, is Associate Professor, Department of Occupational Therapy, School of Health and Medical Sciences, Seton Hall University Interprofessional Health Sciences Campus, Nutley, NJ.
Julie D SmithJulie D. Smith, DSc, OTR/L, is Occupational Therapist, SoonerStart Early Intervention, Family Health Services, Oklahoma State Department of Health, Oklahoma City. At the time of this study, Smith was Doctoral Student, Rehabilitation Sciences Program, College of Allied Health, University of Oklahoma Health Sciences Center, Oklahoma City.
Katelyn HarrisKatelyn Harris, MOT, OTR/L, is Occupational Therapist, KidsCare Home Health, Denver, CO. At time of this study, Harris was Master's Student, Department of Rehabilitation Science, College of Allied Health, University of Oklahoma Health Sciences Center, Oklahoma City.
Lorraine SylvesterLorraine Sylvester, PhD, PT, is Professor Emeritus, Department of Rehabilitation Sciences, College of Allied Health, University of Oklahoma Health Sciences Center, Oklahoma City.
Beth W DeGraceBeth W. DeGrace, PhD, OTR/L, FAOTA, is Associate Professor, Department of Rehabilitation Sciences, College of Allied Health, University of Oklahoma Health Sciences Center, Oklahoma City.
Monmouth University · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

importanceChildren with autism spectrum disorder (ASD) may experience sleep difficulties that worsen into adulthood and negatively influence both child and family, yet the experience is not well understood. Understanding the family's experience can inform occupational therapy providers, future research, and practice guidelines.

objectiveTo examine experiences surrounding sleep for families raising a young adult with ASD (YA-ASD).

designQualitative study in the phenomenological tradition of Moustakas (1994). Experienced researchers analyzed transcripts from in-depth, in-person interviews to triangulate data, distill themes, and construct the essence of family experience. Trustworthiness was established through member checking, audit trails, and epoché diaries that were maintained throughout data analyses.

settingCommunity setting (large city in the northeastern United States).

participantsPeople who self-identified as living in a family arrangement that included a YA-ASD age 15-21 yr, able to verbally participate in English. Families with children diagnosed with developmental disabilities other than ASD were excluded.

resultsSix eligible families identified through volunteer sampling participated. The participants' sociodemographic diversity was limited across household income, education level, and ethnicity. All YA-ASD in this study were limited verbally and unable to contribute. Analyses of interview transcripts revealed five themes that form the essence of the families' experience surrounding sleep. CONCLUSIONS AND RELEVANCE: Sleep issues for YA-ASD continue into adulthood and affect the entire family because of continuous co-occupation; occupational therapy support is therefore important for families of YA-ASD. The lack of effective evidence-based interventions supporting the YA-ASD population also reveals an area for growth. What This Article Adds: The results indicate the importance of addressing sleep for YA-ASD and their families in occupational therapy practice because of its considerable impact on family life.

Indexed as

Autism Spectrum DisorderSleep Wake DisordersAdolescentAdultChildFamilyHumansQualitative ResearchSleepYoung Adult

Identifiers

PMID34780630
PMCPMC8691186
OpenAlexW3195299941

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.