ArticleHealth expectations : an international journal of public participation in health care and health policy2022
Adapting patient and public involvement in patient-oriented methods research: Reflections in a Canadian setting during COVID-19.
Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed.
- Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation.Research involvement and engagement · 2023Article
- Adapting Patient and Public Involvement processes in response to the Covid-19 pandemic.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Engaging with patients in research on knowledge translation/implementation science methods: a self study.Research involvement and engagement · 2022Article
- Reimagining consumer involvement: Resilient system indicators in the COVID-19 pandemic response in New South Wales, Australia.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Exploring the mental health effects of Universal Credit: a journey of co-production.Perspectives in public health · 2022Article
- Adapting patient and public involvement in patient-oriented methods research: Reflections in a Canadian setting during COVID-19.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Patient and public involvement in the build-up of COVID-19 testing in Sweden.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Key Stakeholder Perspectives of Community Engagement Efforts and the Impact of the Covid-19 Pandemic.Journal of primary care & community healthArticle
- Exploring Embodied Experience via Videoconferencing: A Method for Body Mapping Online.International journal of qualitative methodsArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundProcesses of the patient and public involvement (PPI) in health research shifted quickly during 2020. Faced with large-scale issues, such as the COVID-19 pandemic, the need to adapt processes of PPI to uphold commitments to nurturing the practice of 'nothing about us without us' in research has been urgent and profound. We describe how processes of PPI in research on patient-oriented methods of knowledge translation and implementation science were adapted by four teams in a Canadian setting.
methodsAs part of an ongoing quality improvement self-study to enhance PPI within these teams, team members shared their experiences of PPI in the context of this pivotal year during interviews and facilitated discussions. Drawing on these experiences, we outline challenges and reflections for adapting processes of PPI in health research on methods in times of urgency, conflict and fast-moving change. DISCUSSION: Our reflections offer insight into common issues encountered across teams that may be amplified during times of rapid change, including handling change and uncertainty, sustaining relationship-building and hearing differing perspectives in processes of PPI.
conclusionThese learnings present an opportunity to help others active in or planning patient-oriented methods research to reflect on the changing nature of PPI and how to adapt PPI processes in response to turbulent situations in the future.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.