ReviewInternational journal of environmental research and public health2021
Data Linkage in Australia: The First 50 Years.
Review in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The application of spatial measures to analyse health service accessibility in Australia: a systematic review and recommendations for future practice.BMC health services research · 2023Pooled it
- Prevalence of Systemic Lupus Erythematosus in Australia, 2010-2022: A Population-Based Study Using Linked National Administrative Health Data.Arthritis care & research · 2026Article
- Data linkage studies on veteran suicidality: a scoping review of the field, knowledge gaps and evidence appraisal.BMC psychiatry · 2026Article
- Congenital anomaly registers in Australia: A national challenge.Health information management : journal of the Health Information Management Association of Australia · 2026Article
- Methods used to construct disability indicators in linked administrative datasets: a systematic scoping review.Population health metrics · 2025Article
- Health and incarceration research in Australia: a scoping review.The Lancet regional health. Western Pacific · 2025Review
- The COVID-19 Pandemic and Dementia: a Multijurisdictional Meta-Analysis of the Impact of the First Two Pandemic Waves on Acute Health-care Utilization and Mortality in Canada.Canadian geriatrics journal : CGJ · 2025Article
- A national Australian Congenital Heart Disease registry; methods and initial results.International journal of cardiology. Congenital heart disease · 2024Article
- The knowledge and reuse practices of researchers utilising government health information assets, Victoria, Australia, 2008-2020.PloS one · 2024Article
- Does Legislation Impede Data Sharing in Australia Across Institutions and Jurisdictions? A Scoping Review.Journal of medical systems · 2023Article
- Demographic, health, and prognostic characteristics of Australians with liver cancer: a cohort study of linked data in New South Wales for informing cancer control.BMC public health · 2023Article
- The Australian Genetic Heart Disease Registry: Protocol for a Data Linkage Study.JMIR research protocols · 2023Article
- De-identified Bayesian personal identity matching for privacy-preserving record linkage despite errors: development and validation.BMC medical informatics and decision making · 2023Article
- Implementing the English health inequalities agenda: addressing challenges to person-level, cross-sectoral data linkage, access and routine use for local authority public health.International journal of population data science · 2023Article
- Improving Cohort-Hospital Matching Accuracy through Standardization and Validation of Participant Identifiable Information.Children (Basel, Switzerland) · 2022Article
- Health Statistics in Australia: What We Know and Do Not Know.International journal of environmental research and public health · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Population-based data linkage has a long history in Australia from its beginnings in Western Australia in the 1970s to the coordinated national data linkage infrastructure that exists today. This article describes the journey from an idea to a national data linkage network which has impacts on the health and well-being of Australians from preventing developmental anomalies to responding to the COVID-19 pandemic. Many enthusiastic and dedicated people have contributed to Australia's data linkage capability over the last 50 years. They have managed to overcome a number of challenges including gaining stakeholder and community support; navigating complex legal and ethical environments; establishing cross-jurisdictional collaborations, and gaining ongoing financial support. The future is bright for linked data in Australia as the infrastructure built over the last 50 years provides a firm foundation for further expansion and development, ensuring that Australia's linked health and human services data continues to be available to address the evolving challenges of the next half century.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.