ArticleHealth expectations : an international journal of public participation in health care and health policy2022
Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project.
Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 3 of them syntheses that pooled it.
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Who cites it
13 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Barriers and Facilitators to The Involvement of Under-Represented Children and Young People (aged 8-25) in Mental Health Research - a Systematic Review.Clinical child and family psychology review · 2025Pooled it
- Adolescents' involvement in mental health treatment and service design: a systematic review.BMC health services research · 2024Pooled it
- Youth engagement in mental health research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Research Review: A scoping review exploring the needs, barriers, and facilitators to the collection of biological data in adolescence for mental health research.Journal of child psychology and psychiatry, and allied disciplines · 2026Review
- Meta-Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Better Design, Better Engagement, Better Data: Adolescents' Insights for Improving Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Improving Digital Mental Health Services With and for National Minority, Indigenous, and Refugee Youth in Norway: TheJMIR research protocols · 2025Article
- Debate: Are we over-pathologising young people's mental health? The role of participatory research in moving beyond pathology.Child and adolescent mental health · 2025Article
- Anything goes for participant, patient and public involvement in youth mental health research.JCPP advances · 2024Article
- Benefits, barriers and recommendations for youth engagement in health research: combining evidence-based and youth perspectives.Research involvement and engagement · 2024Review
- Understanding and Defining Young People's Involvement and Under-Representation in Mental Health Research: A Delphi Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Characteristics of the ideal healthcare services to meet adolescents' mental health needs: A qualitative study of adolescents' perspectives.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project.Health expectations : an international journal of public participation in health care and health policy · 2022Article
Corrections and comments
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Authors and funding
11 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionIn spite of adolescents' rights to be involved in decisions that concern their health and life, limited research has been published reporting on their involvement in mental health research. Therefore, we aim to present experiences and reflections based on the involvement of adolescents in mental health research, to describe the collaborative relationship between researchers and coresearchers, including the values that underpin their collaboration.
methodsAn autoethnographic approach was used, combined with group reflections. The process was jointly developed, carried out and analysed by adolescent coresearchers and the project's lead researcher over a period of 2 years. The article is jointly authored by the researcher and the ten coresearchers.
resultsSix themes were developed to describe our collaborative relationship, resulting in the involvement of adolescents in decisions about research priorities; in planning and carrying out the research; through to analysis, dissemination and communication of results. The themes include: (1) Commitment motivated by altruism, personal interests and a common purpose; (2) Inclusiveness and support to reduce social uncertainty and strengthen collaboration; (3) Reduced power differentials while ensuring clarity of roles and tasks; (4) Diversity in representation to expand the perspectives of 'the adolescent voice'; (5) Self-determination-supporting adolescents' involvement in decision-making processes; and (6) Flexible and systematic project management. The themes describe the collaboration, the underlying values and motives, the challenges faced and how they were overcome.
conclusionThis self-reflective process describing a 4-year collaborative research project resulted in the development of recommendations for involving adolescents in mental health research. The recommendations could potentially contribute to a change of 'research culture' to expand the currently limited involvement of adolescents in research. PATIENT OR PUBLIC CONTRIBUTION: Adolescents have contributed as coresearchers through all phases of the research project and as coauthors of this article, including planning, participation in the self- and group-reflective processes, analysis and authoring the article.
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