Evidence map›Paper›PMID 34751005›Full record

ArticleNursing open2022

Family caregivers' advocacy in voluntary stopping of eating and drinking: A holistic multiple case study.

Jasmin Eppel-Meichlinger, Sabrina Stängle, Hanna Mayer, André Fringer

Abstract read
In one paragraph

Article in Nursing open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Jasmin Eppel-MeichlingerInstitute for Applied Nursing Sciences, Eastern Switzerland University of Applied Sciences, St. Gallen, Switzerland.ORCID 0000-0002-5642-5791
Sabrina StängleInstitute of Nursing, School of Health Professions, ZHAW Zurich University of Applied Sciences, Winterthur, Switzerland.ORCID 0000-0003-1664-8824
Hanna MayerDepartment of Nursing Science, University of Vienna, Vienna, Austria.ORCID 0000-0002-7206-9432
André FringerInstitute of Nursing, School of Health Professions, ZHAW Zurich University of Applied Sciences, Winterthur, Switzerland.ORCID 0000-0003-4950-7788

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimTo gain insight into the experiences of family caregivers who accompanied a loved one during voluntary stopping of eating and drinking and to identify similarities and differences between cases of voluntary stopping of eating and drinking to develop a conceptual model.

designA qualitative holistic multiple case study.

methodsWe conducted narrative interviews with family caregivers (N = 17). We first analysed them inductively within the cases, followed by a cross-case analysis to merge the experiences into a conceptual model.

resultsFamily caregivers who could accept their loved one's wish to die stood up for the last will, especially when the cognitive abilities declined. They had to take on the role of an advocate to protect their self-determination from others who tried to interrupt the process. In their advocacy, they found themselves constantly in moral discrepancies. Usually without support, they provided nursing care until death. The subsequent processing phase was characterized by evaluating the dying situation and placing voluntary stopping of eating and drinking in their value scheme.

Indexed as

CaregiversHumansQualitative Researchcase studyexperiencesfamily caregiversqualitative studyvoluntary stopping of eating and drinking

Identifiers

PMID34751005
PMCPMC8685828

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.